Forum Discussion
decisions.....decisions
So hard to make decisions when you feel like you only have half the information....... far out. Final report is in, I haven't seen it bc nurse has but I didn't try to read it over the table. She contradicts what the surgeon said last Friday. I tend to think she was more accurate....I must admit I saw him as an outpatient last Friday and he was going like the clappers. He did however drain my seroma after a four hour wait and 300 kilometres.
I see the surgeon again this Friday after he has presented at the group playfest to hear what the general consensus is about a treatment plan.
So hormone positive on all three tumours, HER negative. On the right IDC grade2 9mm, positive sentinel node. ( only 1 of 1 ). Clear margins.
Bc nurse tells me the left breast would be counted as 1 tumour? Papillary one ( why did she mention micro papillary....) 17mm clear margins. the other is IDC 33mm . Calling both as grade 2, hormone +, HER -. 2 nodes from the sentinel set of 4 positive
Proliferation rate KI67 30 to 35%.
How do I decide....... if I don't really want an axilla disection ?......far out Brussel sprout...... I sort of feel mutilated enough thanks. 3 Csections an abdominal hysterectomy and now this....... far out Brussels sprout x 2. I feel like such a hot specimen :(
I see the surgeon again this Friday after he has presented at the group playfest to hear what the general consensus is about a treatment plan.
So hormone positive on all three tumours, HER negative. On the right IDC grade2 9mm, positive sentinel node. ( only 1 of 1 ). Clear margins.
Bc nurse tells me the left breast would be counted as 1 tumour? Papillary one ( why did she mention micro papillary....) 17mm clear margins. the other is IDC 33mm . Calling both as grade 2, hormone +, HER -. 2 nodes from the sentinel set of 4 positive
Proliferation rate KI67 30 to 35%.
How do I decide....... if I don't really want an axilla disection ?......far out Brussel sprout...... I sort of feel mutilated enough thanks. 3 Csections an abdominal hysterectomy and now this....... far out Brussels sprout x 2. I feel like such a hot specimen :(
31 Replies
- Correct. The oncologists are the ones who really determine the treatment after the surgeon is done, including prescribing the hormone blockers.
Try not to stress about it too much until you've spoken to the onc. There are plenty of folk here who didn't have chemo, and some that had surgery and pills only. We're all different and the docs treat us to the best of their knowledge, and the knowledge of BC treatment all over the world. Hang in there, K xox - So really I amnonethewiser..far out. According to the surgeon right side smaller than micromets in the node and mastectomy done on that side so it is a non event. The left side he wants to do a axilla clearence ( level one and two) ..... and then tablets? Hormone blockers. No chemo no rads? He stated that they don’t like to do chemo unless they have to.
Could I be so lucky? He is however giving me a referral to the oncologist as they are the ones that do the tablets?
wt? - Sorry my edit button is being stubborn & won’t work!!! Should have been @jan61 not @jan61my
- @jan61my bc nurse was so wrong on so many things. She said I had a microscopic lump in lymph node & it was 11mm. Tumour in breast 19mm, it was 25mm. My surgeon was not very impressed to say the least! I was so devastated when he corrected everything. My oncologist made sure I understood everything perfectly & that made my decision easy.
- Hi @jan61 all the lovely ladies have made great comments. I just want to say I understand you are a private person and we are our best advocate for making our own decisions but you will find if you have a really good BC nurse they should fully understand your pathology report inside out. I find that surgeons are expert in surgery and what the cancer encompasses as with the oncologist and rad oncologist are experts in their speciality. I just found that my BC nurse covered all aspects from the beginning and through the whole miserable process to the finish of active treatment and will be ongoing for checkups. They should be your best advocate and can explain everything in layman terms to our already frazzled brains. I couldn't even imagine how you must feel after already having plenty of surgery but your team will make the best suggestions for you about what is the best way to get rid of this bastard of a disease and ultimately that is all anyone can wish for. Good luck with your decisions. xo
- @kezmusc yep I have 2 out of 4 on the left pos and I thought 0 out of 1 on the right ( according to bs when he drained the seroma ) but according to her the right is positive as well. 2 axillary clearences frightens the crap out of me especially the long term risks.
yes I am rural but I know the system pretty well . I worked in it for over 20 years. - @Doodo that is so very unfortunate. I am a bit worried she has taken one of my fears ( and I have plenty ) and run with it.
- If you don't like your BC nurse @Jan61. Tell her you don't need her services thank you very much. You don't have to have one. Just means there's no one else to help you with the leg work if you need it or explain things in normal people terms if you get bamboozled by medico language.
Generally speaking the BC nurse is there for support and to be your advocate. Say you chose not to have surgery but the surgeon really says its' the best thing and tries to talk you into it. She will (should) go in to bat for your wishes.
They can attend the MDT meetings so they are up to speed with what your treatment plan is and what has been discussed and can give you results if they have spoken with the surgeon and been given the ok to.
Hmmm, I would really have a double check on the node surgery with your B/S don't you have two nodes out of 4 positive or did I misread that? They tend to avoid operating if it's not entirely necessary.
All the best with your decisions.
xoxoxo - Hi @jan61. To answer someone so that they get notified, use their forum name with the @ sign un front, like I did at the beginning of this post. :)
- My bc nurse called me the day prior to seeing my surgeon. Told me I didn’t need chemo. I was so excited I rang all my family & told them. Wrong!!!! I certainly did need & have chemo 😢
