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jan61's avatar
jan61
Member
7 years ago

decisions.....decisions

So hard to make decisions when you feel like you only have half the information....... far out. Final report is in, I haven't seen it bc nurse has but I didn't try to read it over the table. She contradicts what the surgeon said last Friday. I tend to think she was more accurate....I must admit I saw him as an outpatient last Friday and he was going like the clappers. He did however drain my seroma after a four hour wait and 300 kilometres.

I see the surgeon again this Friday after he has presented at the group playfest to hear what the general consensus is about a treatment plan.

So hormone positive on all three tumours, HER negative. On the right IDC grade2 9mm, positive sentinel node. ( only 1 of 1 ). Clear margins.

Bc nurse tells me the left breast would be counted as 1 tumour? Papillary one ( why did she mention micro papillary....) 17mm clear margins. the other is IDC 33mm . Calling both as grade 2, hormone +, HER -. 2 nodes from the sentinel set of 4  positive

Proliferation rate KI67 30 to 35%.

How do I decide....... if I don't really want an axilla disection ?......far out Brussel sprout...... I sort of feel mutilated enough thanks. 3 Csections an abdominal  hysterectomy  and now this....... far out Brussels sprout x 2. I feel like such a hot specimen :(


31 Replies

  • Hi @jan61,

    It just stinks we have to make all these decisions about which bits to chop, nuke, poison and radiate.  

    Make a list of questions for the surgeon and don't leave without your answers and copies of you reports.  He/she will have all the info after the MDT meeting.

    With nodes positive they are probably going to recommend the dissection I would imagine.  Those nodes are the stinky things highway to the rest of your body so you really don't want to leave them there.
    Mine was stage 2 grade 2 and once the dissection was done there ended up being 5 out of the 24 that were positive and they were breaking out of the lymph nodes into the surrounding area.  Couldn't tell that until it was out.

    All the best with your decisions lovely.  

    xoxoxox