Hi @Ausmum2 I hope you are doing ok.I also had a double mastectomy as I had ILC in my left breast. I did the same chemo as you - I started in January 2020 and finished in the middle of May. It is almost a year ago!
I would definitely give the cold cap a try. It didn’t work for me and it may have been to do with the cap not fitting properly. I had a fabulous wig ready to use - my plan B. My hair has grown back pretty quickly and no one would know what 2020 was like for me if they didn’t know me.
There is a lot of information on here about cold capping, but here are a couple of things to do so you are prepared:
* Read about the machine and the cap. I think the ‘Paxman’ seems to be the one the hospitals use. It really helps if you understand how the cap needs to fit as there are different sizes. You want it snug all over your head - no air pockets.
* I would wet my hair before I got to the treatment and then the lovely nurses would put conditioner through it before putting the cap on.
* You have to be extremely gentle with your hair - only wash it once a week and be gentle with the brushing.
* I also took a Panadol before I arrived to help with the cold on my head.
* I was given a towelling headband to put over my ears and you may need something for your forehead to protect it from the cold.
I had expanders placed at the time of my mastectomy and have since switched to implants. I am now booked for nipple tattooing and I am well and truly back at work. I just want to let you know that you will get there too. Chemo is such an individual thing and as has been said, it’s grotty but doable. @Abbydog - great to hear you are doing well!
I am happy to help with any more information. Take care Mx
PS Check out the information on doing the cold therapy for your hands and feet when you have taxol