Cooling cap
Hello beautifuls, So I’m tossing up between pre shave and trying the cooling cap. Has anyone has success with the cooling cap ?? I’ve had a conversation with my 15 year old son and he wants me to shave as he doesn’t want to watch it fall out. I think he was very brave for telling me this. I’m just wondering if anyone has had success with the cooling cap as I was going to try it ??641Views1like25CommentsThe good, the bad and the ugly of my cold cap journey
Dear everyone, I am two and a half months past my last cycle of chemotherapy so I though I will share my experience with the cold calp. I had 4 cycles of TC (20/11/18 to 23/01/19). I chose to do a neoadjuvant treatment and start with chemotherapy to allow genetic testing to happen and give me some time to think about the best surgical approach. I used the Paxman cold calp. The extra small cap was too tight, so I wore inner small which moved a bit and outer small to try to keep it in place. I have lost about 50% of my hair (and I have heaps to start with) mostly in my crown, probably because the cap was a bit big for me. All the usual instructions to preserve hair were followed - washes once a week with coldish water and mild shampoo provided by my hospital (Sukin), no hairdryer, gentle brushing, silk pillowcase... They tell you that you are going to lose hair, but I don't think that I was mentally prepared to deal with all the shedding and the clamps of hair in the brush. At face value the treatment has been successful, I only had to wear head scarfs for a couple of months and by now not too many people will tell that I have lost hair. Was it an uncomfortable experience?, Yes, especially the first 20m. I learnt after the first cycle to take the Lorazepam that the hospital provided me to relax a bit earlier in the day at home (about an hour before treatment started) so by the time I got to hospital was almost out and barely felt a thing. Was it worthy?, Absolutely, as you can see in the photos I still have a decent amount of hair Would I do it again?, No, I wouldn't, especially if I required a longer chemo treatment. Chemotherapy and all the decisions that you need to take when fighting cancer is a stressful enough experience. Worrying on whether the caps are working and constantly cleaning up hairs adds another layer of stress that in hindsight I didn't need. Half way through the treatment I had a big bold spot at the top so I started wearing head scarfs and I grew to love them. Below is a photo collage of my journey, I hope that it is useful ladies!2.8KViews3likes14CommentsReflux and shampoo for Cold Cap Chemo
I was diagnosed with early stage breast cancer with lumpectomy in October but I'm having four treatments of cold cap chemo AC and was wondering whether the Nioxin shampoo was a good one to use while going through this? Also what's the best for Reflux? This is my first post, so thanks for reading. Cheers.1.9KViews0likes21CommentsHello
Hi everyone, I was diagnosed mid February and had surgery on the 4th April where the mass was removed and lymph nodes were involved. I was scheduled to have further nodes removed but it was cancelled as more tests were needed on Liver and Spine but thankfully these were all clear. I am scheduled to start Chemo this Thursday (hopefully no more setbacks) and even though I do want to get it started I am feeling very fearful about it too. I am going to try Cold Cap treatment and wondered whether anyone else has had this done and how it went. I am listening to Mediation Apps at night which is really helping on Positivity and Gratitude. I feel like a part of me is missing, and have lost confidence in everything at the moment. I know I will get myself back but wonder if I will ever totally be me again. This is my first time on this site, and feel this might let me get out what I am actually feeling, as I do hide a bit from the family, so as not to let them worry too much. Hopefully through this journey I will have learnt a lot and able to help others going through the same thing.191Views0likes10Comments