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Cooling cap
Hello beautifuls, So I’m tossing up between pre shave and trying the cooling cap. Has anyone has success with the cooling cap ?? I’ve had a conversation with my 15 year old son and he wants me to shave as he doesn’t want to watch it fall out. I think he was very brave for telling me this. I’m just wondering if anyone has had success with the cooling cap as I was going to try it ??966ViewsSign in to react to this post25Comments
The good, the bad and the ugly of my cold cap journey
Dear everyone, I am two and a half months past my last cycle of chemotherapy so I though I will share my experience with the cold calp. I had 4 cycles of TC (20/11/18 to 23/01/19). I chose to do a neoadjuvant treatment and start with chemotherapy to allow genetic testing to happen and give me some time to think about the best surgical approach. I used the Paxman cold calp. The extra small cap was too tight, so I wore inner small which moved a bit and outer small to try to keep it in place. I have lost about 50% of my hair (and I have heaps to start with) mostly in my crown, probably because the cap was a bit big for me. All the usual instructions to preserve hair were followed - washes once a week with coldish water and mild shampoo provided by my hospital (Sukin), no hairdryer, gentle brushing, silk pillowcase... They tell you that you are going to lose hair, but I don't think that I was mentally prepared to deal with all the shedding and the clamps of hair in the brush. At face value the treatment has been successful, I only had to wear head scarfs for a couple of months and by now not too many people will tell that I have lost hair. Was it an uncomfortable experience?, Yes, especially the first 20m. I learnt after the first cycle to take the Lorazepam that the hospital provided me to relax a bit earlier in the day at home (about an hour before treatment started) so by the time I got to hospital was almost out and barely felt a thing. Was it worthy?, Absolutely, as you can see in the photos I still have a decent amount of hair Would I do it again?, No, I wouldn't, especially if I required a longer chemo treatment. Chemotherapy and all the decisions that you need to take when fighting cancer is a stressful enough experience. Worrying on whether the caps are working and constantly cleaning up hairs adds another layer of stress that in hindsight I didn't need. Half way through the treatment I had a big bold spot at the top so I started wearing head scarfs and I grew to love them. Below is a photo collage of my journey, I hope that it is useful ladies!3.6KViewsSign in to react to this post14Comments
Reflux and shampoo for Cold Cap Chemo
I was diagnosed with early stage breast cancer with lumpectomy in October but I'm having four treatments of cold cap chemo AC and was wondering whether the Nioxin shampoo was a good one to use while going through this? Also what's the best for Reflux? This is my first post, so thanks for reading. Cheers.2.7KViewsSign in to react to this post21Comments
Hello
Hi everyone, I was diagnosed mid February and had surgery on the 4th April where the mass was removed and lymph nodes were involved. I was scheduled to have further nodes removed but it was cancelled as more tests were needed on Liver and Spine but thankfully these were all clear. I am scheduled to start Chemo this Thursday (hopefully no more setbacks) and even though I do want to get it started I am feeling very fearful about it too. I am going to try Cold Cap treatment and wondered whether anyone else has had this done and how it went. I am listening to Mediation Apps at night which is really helping on Positivity and Gratitude. I feel like a part of me is missing, and have lost confidence in everything at the moment. I know I will get myself back but wonder if I will ever totally be me again. This is my first time on this site, and feel this might let me get out what I am actually feeling, as I do hide a bit from the family, so as not to let them worry too much. Hopefully through this journey I will have learnt a lot and able to help others going through the same thing.274ViewsSign in to react to this post10Comments
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