Forum Discussion
- CheriMember@marilyn_p thank you. Treatments going ok. My appetite has decreased but thank you will definitely try to incorporate more veggies and berries.
Update also to anyone on the thread. I didn't use the cold cap due to the low chances of helping me, starting losing bunches of my hair after 2nd chemo so I decided to shave it on the weekend. Adjusting to my new breezy look 💞
Lots of love and hugs to all you beautiful Ladies - marilyn_pMemberHi Cheri, I wish you well with your treatments and urge you to please eat as many vegetables and berries as you can every day. All vegetables are loaded with high levels of nutrition, you can eat them raw or cooked. Berries are antioxidants that can help reduce inflammation. These foods can help you feel better.
- PamelacMemberThank you Afraser. I do have some in the cupboard and have started using.
- AfraserMemberMy doctor recommended nose oil (from the chemist) for my bleeding nose, due to Taxol. It’s a refined sesame oil and it did help. Others say pawpaw ointment helps and honey is often good for this sort of thing too. Best wishes.
- PamelacMemberThanks Abbydog. Sorry; I just found my way back to this page and saw your response. I have had another session since and it will now be like 3.5 hours every treatment. The cap was more tolerable the second time - maybe I just need to get used to it.
I am having paxli weekly and two immuno therapies added third weekly.
I am finding my skin is breaking out badly and extremely sensitive. The skin in my nose bleeds every time I wipe it. Hayfever and crying is not helping I'm sure. Do others use a special cream for skin? - AbbydogMemberHi Pamelac,
I'm happy to hear that you tried the Cold Cap. Did you have the cap on for the whole time that the infusion went in? What did they do to take 7hrs? Which Chemo are you on? I agree it is not pleasant, but tolerable. I used to fall asleep while it all happened. I found the most annoying thing for me was going to the bathroom and taking the Cold Cap tubing with me. I couldn't wait, as they do give a good amount of IV fluids. I was never advised to have Conditioner on my hair, but I have heard of that since I used the CC. I read that it is very important to have the hair very wet, especially if the hair is curly, which mine was. When I started Chemo we still had some warm weather in March. That made having wet hair not so bad, but over the 20 weeks it did get cold. Make sure the Cap fits well, especially on top. For a couple of times I wore a chin strap. It went over the top and under my chin. Most of my hair thinning was on top, where I believe the fit was not always good. For me it worked quite well, No one would have known I'd had chemo, at least by my hair. Towards the very end of Chemo I lost eyebrows and eyelashes. I hope that it goes well for you. So far as the Cold Cap goes, you should know if it is working well enough by the third or fourth chemo. Keep in touch. - PamelacMemberMy first chemo yesterday (6/10/23).
giving the scalp cooling a go.
Ended up being a 7 hour session as it was my first!! Only 2.5 hours in the cap though - not pleasant but tolerable. So glad to get it off! Very ugly look with the conditioner in the hair walking out of the hospital but I will make a turbin to cover up next week. - CheriMember@Tarma sorry somehow I didn't know you had responded but yes the first session was last week , next one is Tuesday. Everything has moved so quickly , only found out less than a month ago and already started chemo so Saturday it hit me this is really happening and there were a lot of emotions... for the most part I have been pretty positive so I guess that off day is normal. Hope all you ladies are doing well. I appreciate the feedback care and engagement
- CheriMember@Abbydog thanks for the response,seems like I missed a few responses. I did not receive notifications for them. But yeah using the calculator that gin gin shared the chemo meds I am on it's not really an option. I had my first session last week with little side effects so far .... next one is Tuesday. I will find the treatment I am on and share.
- AbbydogMemberDear Cheri,
I couldn't reply earlier, as this new security system had me locked out until today. Have you started Chemo yet and have you used the Cold Cap? I used it very successfully. Thinned only slightly where the cap didn't fit the best. I had Epirubicin, Cyclophosphamide and Paclitaxol. Let me know if you want to know more. All the best.