nicole_h
11 years agoMember
Can't sleep!
Just reading some of the old and recent posts. There are so many of us it's scary as to why. I'm also thinking I'm in the worst area in Australia for support. I have never been given options or cho...
I writing this not as a fighter or a survivor but as the Big Sister of a BC fighter (with secondary now in other places). Take it from me if the last 3 years have taught me anything it has been that this disease is heartless, it preys on the rich and the poor and the weak and the strong and just when you think you can't take anymore a sliver of a rainbow appears and makes it all that treatment worthwhile. My sister and I talk almost everyday (and she is 1300k'ms away) and I can tell when she has not so positive results from her monthly check ups because she will text me....it is very hard for me to understand why she wont just ring but I have to respect her wishes, when SHE is ready she calls. The best information I recieved was from the BCNA - it was a pack of information which included information for relatives of BC fighters including what to say, things to do, things to offer, believe me some of these where so basic but I had just honestly NEVER thought of them, as a result when I went with her while she had treatment (3 hours from her home and everyday so 6 weeks away from home)) I filled her freezer full of homecooked food she loved so it was just a case of her taking it out and re-heating, I called her my fuzzy little gumnut when her hair started to regrow (we loved Snugglepot and Cuddlepie as kids) and I just wet washers and kept her cool when she was unwell after treatment. It is so very hard for loved ones when people just close down and don't want to talk but you must also remember, sometimes we just dont know what to say, nothing that we can say will make you better or stop you hurting so sometimes it is just easier to say nothing. My sister has recently changed Oncologists and is so much happier with her new Doc, if you are not happy with the information you are getting a second opinion cant hurt, from what I have heard the nurses etc in Orange are wonderful and I am sure they would be willing to chat and guide you in the path of getting all your information and feeling comfortable with your choices, and please remember if you need to chat there is always this page, .......Good luck with your treatment journey as it begins keep that fighting spirit going....xxxx