nicole_h
11 years agoMember
Can't sleep!
Just reading some of the old and recent posts. There are so many of us it's scary as to why. I'm also thinking I'm in the worst area in Australia for support. I have never been given options or cho...
I have read some of your postings - and with much interest.
I haven't had a very good experience with my breast care nurse. I think they are supposed to be able to provide information on available services and co-ordinate them but the physio she sent me to did not even know what cording was, let alone how to deal with it. Ho hum. Ladies seem to LOVE their Nurse or HATE them - if she sends them to a 'Look Good Feel Better' program, I guess that helps some ladies.
Like you, I had the pathology report from the Breastscreen biopsy but received no other. If you get onto the Jane O'Brien website (she is a surgeon at the Epworth Hospital in Melbourne) she has a great explanation as to how to read it. That is helpful. I found it way after I needed it, though.
My GP is fighting me on going off Zoloft - this is not good for Tamoxifen - so I am going off it VERY slowly anyway. He is VERY laid back, too laid back, but being in a rural area I am lucky to have a GP who actually speaks English! He has seen all reports but says there is nothing special - meaning nothing he has to deal with urgently, I guess. Last week I glanced at his pants and said "if it were men's bobbly bits ....." !! (leaving it open for him to think about).
My mastectomy was at the end of August and I am so 'down' at the minute. I feel very alone. I had a huge meltdown the other night and this has ruined any good in my relationship as he is just not understanding me at the minute. His mind is more on if and when I die and how that will affect him.
As to why so much BC - well, us proactive ladies have the mammograms and they can find it now. My Mother lived to 95 - who knows, she may have had it but they never found it.
Sorry this is a miserable posting but it may help for you to know you are not alone in thinking the whole system is a bit of a let-down at times, depending on where you live and how much money you have.
Keep as well as you can and good luck for this week. You will be in my thoughts.
Cyber hugs
Summer :-)