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misstea's avatar
misstea
Member
5 years ago

Being Alone is not good

Hi Members
I have been dignose May 2021 Invasive breat cancer, Multifocal and Type ER positive PR Positive. Aged 50 years old.
As I am a public patient, I saw the breast surgeon twice.  The information that I received was too muched too hear and this has affected my mental health. The fact was, the surgeon said,  "if you dont do this them you will died". I was not given a choice. They are doing their jobs but I wish they were more considered towards me as I have other diseases in my body. From the catscan they have found that I have mild cirrhosis. Another bad luck that I have to deal with. I am not having a good time with accepting my cancer and other complex issues. I have not started treatment because I have decided to get a mental health care plan from my GP so that later in the near future I can get councelling. I have booked an appointment to see a different breast Doctor to discuss my case.
My family are overseas and interstate. My only first born adult has left me and living elsewhere. I do have some (not many) work mates that I can ring for a chat. Basically I feel ALONE in my journey.
I raised my first born alone single mum. the father lives overseas and I lived alone. BEING ALONE IS NOT GOOD.
A Question
Anyone got any links or information from non profit organisation or community websites for Women like me living isolated with cancer  loneliness and grieve is a strange feeling to have. Thank you for reading my story. XXX

15 Replies

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  • MicheleR's avatar
    MicheleR
    Member
    5 years ago
    Hi @misstea,

    Im in the south. You can message me if you like. Click on my profile and there is a message icon. 

    It is a lot to deal with. Some doctors are a bit blunt at times. I think they want to help but stats etc can be very overwhelming. 

    Do you know what treatment they want you to have? You dont say how big the cancer is.

    There is a bcna virtual conference about treatment options and how to decipher on july 15. You could sign up for that. Those conferences are really good. One of the drs they often have has had breast cancer and understands the emotions around it. Also they have survivors and nurses who have different perspectives.

    If you look at the mcgrath foundation they list out breast cancer nurses in your area and you can send an email and an they will respond to you. The cancer council has nurses too. They rang me one day and it was exactly what i needed. The lady was so lovely. 

    There are many of us here who understand the shock of it all. The treatment itself can be daunting but it is doable. Because of covid i wasnt able to have many people with me in hospital, at chemo etc. Many of the ladies in melbourne have also experienced treatment without much support. There is empathy and support here.

    Michele
  • misstea's avatar
    misstea
    Member
    5 years ago
    Hi Michele
    Thank you for sharing with me about the face book group.  I will look into it. I have not decided yet about treatment and have not started. I need time to get my head around this nightmare that eventually I have to faced. 
    I am in the north. 
    XXX
  • MicheleR's avatar
    MicheleR
    Member
    5 years ago
    Group is "Adelaide Breast Cancer Friendship Group Chat Room". 

    Make a request to join. Very supportive group of people at all stages of treatment or survivorship
  • MicheleR's avatar
    MicheleR
    Member
    5 years ago
    Hi @misstea,

    Sorry you are having a hard time. Im in adelaide too. There is a facebook support group for adelaide breast cancer patients and they sometimes have get togethers. Ive just joined it. There are lot of women in this group (over 700) and this may help. 

    Where are you getting treated? 

    I am 49 and finished active treatment in March. I had a mastectomy, chemo and radiotherapy. It is hard and yes unfortunately it can be lonely even if you have people around you. I think it helps to be connected with others in a similar situation.

    Ive just got a mental health plan now - you are ahead of the game in that respect.

    The feelings of overwhelm and confusion are normal and not pleasant.

    I will get you face book group name.

    Hugs to you. 
    Michele
  • June1952's avatar
    June1952
    Member
    5 years ago
    Hello @misstea.  Welcome to this club none of us ever wanted or thought we'd need to join.  There are many ladies on here who will be keen to help you.
    Perhaps if you put your approximate location in your profile (it will appear next to your name) you will get more precise information close to you.
    All the best.  Sending you a big cyber hug.  💖