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newbie12's avatar
newbie12
Member
13 years ago

anybody out there?

hey everyone, I actually tried to post something last night but realised I had added to comment to The PErth Women's group. So sorry about that. I thought I would try again. I am 46 have had a recent mastectomy and will start chemo in January. I have a 4 year son and worry about how he is going. I would love to connect with a group or emmbers that I can talk to about this journey as it's very hard to talk to friends about it besides saying "yeah I'm fine, going well" as I really don't think they really want the details.

anyway I hope this reaches the noticeboard this time. fingers crossed

39 Replies

  • hey trina thanks for the words of encouragement and it's great to hear from someone on the other side of the treatment. Now tell me wig, bandana (actually just typed banana which put an interesting picture in my head about headwear), turban or baldy?

    majella

  • Hi Ladies

    Just a quick message to let you know that you can get through this... With the exception of Arimidex for the next 5 years, I've finished my treatment. It's been a tough 8 months.... but looking back I'm surprised how fast the time has flown. Chemo is 'doable'. It's tough, and everyone reacts differently... and Radiation (if you have to have it) is much easier... Just take it one day at a time and ask lots of questions...

    Regarding children - I have an 8 year old son... I told him little bits at a time, and said that Cancer was just another word for 'sickness'... I had Breast Sickness.... I told him the horrible medicine would make my hair fall out, but it has grown back... they adjust...

    If I can help answer any questions on what's around the corner.. feel free to message me... 

    Trina

  • Thanks Annie I'll keep you posted on the school situation. My OC said everyone reacts differently to the drugs but I'm worried about how I'll go. I just think about the big picture and that is my family but late at night in the dark the tears do come- like releasing a pressure valve.

    Thank you to everyone today who has made me welcome, I'm sure there will be many questions inthe future and I do not feel so alone, I hope everyone feels that too.

  • it's one of my favourites too. At least now you know what you are dealing with, there is no place for it hide. Someone wrote in a card for me that you're going to face  that little b***d, smash it into the ground and then give it the big finger when you have finished. It is a battle. We know what the enemy looks like and I look forward to blasting it into nonexistence, one step at a time gaining ground with each procedure, each new treatment. I actually took photos of my breasts together the night before my procedure, I haven't told anyone that. Will look good at Harvey Norman if my husband takes the camera to have photos printed, but I wanted to acknowledge it and say goodbye. I'm glad glad I did that so I could move on to the next step. Hope this helps.

     

  • Hi Newbie12,

     

    I am in Brisbane too, no doubt we will run into each other sometime! Unfortunately, my results came back bad. 8cm tumour, margins not big enough, HER2 + and cancer in 12 out of 15 lymph nodes. Mastectomy booked for Monday....

  • Hey, I'm in the same boat.. Diagnosed in Nov, followed by mactectomy & imm reconstruction. Now going through treatment options with MO, he recommends chemo but I'm anxious about it all, also we don't agree with the "cocktail mix", so going over to him tomorrow to see if we can change it.. Newbie, I'm a mum too, have an 8 yr old and was also worried about how he and other people would handle my BC. But honestly Ive been surprised how well he and his friends have embraced it all, and parents at his school have been so kind offering help. I hope you'll find this too.  I'm often online, so if you'd like to chat you'll find me here.  Annie     

  • Hey Poppy7 , waiting feels like you are holding your breathe for 3 days. It's all slow motion. I'm in Brisbane by the way and start my chemo on the 14th of January. I have you in my thoughts today.

  • Hi there, I am newly diagnosed (30 Nov). I had a lumpectomy and axillary node surgery on the 10th December. I am going back to the clinic today to find out the path results. Fingers crossed! I will also be going through chemo, most likely in the new year, so you are not alone.

  • Hi there, I am newly diagnosed (30 Nov). I had a lumpectomy and axillary node surgery on the 10th December. I am going back to the clinic today to find out the path results. Fingers crossed! I will also be going through chemo, most likely in the new year, so you are not alone.