Another sister reporting for duty
Hi all I’m Linda, a 54 yo from the Barossa Valley in SA, a wife, mother to 5 humans and 1 furkid, a lover of all things Disney & Robbie Williams and living with a fairly new diagnosis of DCIS. His...
Forum Discussion
So sorry to see you here, @lindaandchris ... but you are in the right spot for support and information from those who've 'been there, done that'. Everyone's experience is totally unique & the accounts you read here will hopefully smooth the way for your own experience. I hope you are recovering well from your surgery xx
Given your previous lumpectomy history, I am surprised that your surgeon hasn't already organised the CT/PET/Bone scans ... it would definitely be worth chasing him up on that on Fri - specially with your significant weight loss as well. xx It is all relevant to your diagnosis xx
Coming from a nursing palliative care background - you would probably expect to not be as 'messed up' as you say you are - but as you say, facing your own mortality has shaken you, as happened with all of us. This disease really does muck with your brain even more than your body xxx. So don't be afraid to look at getting some counseling xx
If you can, take the time to listen to the Charlotte Tottman Podcasts on her BC 'journey' ... she is a BC psychologist who had a double mastectomy (choosing to remain flat) in 2018 - so she 'gets it' ... and her podcasts are really helpful. She has a very easy & natural delivery .... click on this link & then click on 'view all tracks' .... and start listening to No 13 - D Day (the first episode of the first series.) You can also pick & choose which ones you want to listen to ....
https://soundcloud.com/search?q=charlotte%20tottman
I hope you hear from your Breast Care Nurse soon - maybe message her again? xx
Take care & all the best for Friday - hopefully once you have your 'game plan', you will feel more settled. xx
Consider recording the meeting on your phone, so you can go over it again later, at home. It can be difficult to remember everything that was said at the time - so having the recording as 'back up' is handy.
Given your previous lumpectomy history, I am surprised that your surgeon hasn't already organised the CT/PET/Bone scans ... it would definitely be worth chasing him up on that on Fri - specially with your significant weight loss as well. xx It is all relevant to your diagnosis xx
Coming from a nursing palliative care background - you would probably expect to not be as 'messed up' as you say you are - but as you say, facing your own mortality has shaken you, as happened with all of us. This disease really does muck with your brain even more than your body xxx. So don't be afraid to look at getting some counseling xx
If you can, take the time to listen to the Charlotte Tottman Podcasts on her BC 'journey' ... she is a BC psychologist who had a double mastectomy (choosing to remain flat) in 2018 - so she 'gets it' ... and her podcasts are really helpful. She has a very easy & natural delivery .... click on this link & then click on 'view all tracks' .... and start listening to No 13 - D Day (the first episode of the first series.) You can also pick & choose which ones you want to listen to ....
https://soundcloud.com/search?q=charlotte%20tottman
I hope you hear from your Breast Care Nurse soon - maybe message her again? xx
Take care & all the best for Friday - hopefully once you have your 'game plan', you will feel more settled. xx
Consider recording the meeting on your phone, so you can go over it again later, at home. It can be difficult to remember everything that was said at the time - so having the recording as 'back up' is handy.