Forum Discussion
Nicky123
3 years agoMember
All the tests to update new diagnosis
What a couple of weeks I have had. After being called back to Breastscreen NSW (amazing service and staff), I had the battery of tests at the post mammogram assessment including 3 biopsies.
Originally a lump and calcifications (left) and Stage 2 DCIS and calcifications (right) in between Stage 1-2 DCIS.
To the surgeon (amazing, feeling very confident with her) and then an MRI yesterday to rule out a higher stage.
Called back today for another 2 biopsies (left again, completely different places) and another MRI. Lymph nodes are looking ok.
Back to the surgeon on Monday AM to discuss treatment options when pathology is back.
I am so grateful for how kind all the nurses, radiologists and doctors have been / even when I have ‘lost it,’ almost fainted or felt nauseous etc etc.
Taking it one day at a time and trying not to predict or worry.
It all happens so, so fast - so much to take in and to recalibrate every visit - something new and something more.
I know that all these tests and checks will help to work out exactly what is happening and then formulate the best treatment plan moving forward.
I know that all these tests and checks will help to work out exactly what is happening and then formulate the best treatment plan moving forward.
I don’t have any questions at the moment - well, lots but know I just need to wait. I do want to say how helpful it’s been reading the posts and discussions. I’m sure I’ll be back for more in the future.
Thank you, Nicky (51, Sydney)
48 Replies
- Nicky123MemberThanks so much for the quick response and advice @arpie - it’s so comforting to hear back from everyone here - and you’ve been providing me with lots of reassuring and helpful info over the last couple of weeks, thank you.It’s a bit of a lull at the moment - but keeping myself busy with work and also some good downtime and exercise as well.Getting a chronic illness plan tomorrow (I think that’s it) and saw the chiro today. Massage coming Sunday. Feels indulgent but might be a while between massages.Speak soon - hope you’re all having a good week.Nicky 🌸
- arpieMemberHi @Nicky123 ...
Pathology results 'time' can vary - from memory, mine took a couple of weeks, but it seemed like 6 months - hopefully yours will be quicker xx ......
The surgeon may suggest what he 'thinks' will happen relative to your results - but it is only after you see the Medical Onc and Radiation Onc will you will know for sure what the treatment path will be, as that is their specialist area. xx Make sure you ask your surgeon for a paper copy of your results, for your records.
Your Breast care nurse will definitely be your 'go to' person for answers to your queries .... and us ;)
take care & all the best for your surgery & results xx - Nicky123MemberHi everyone - this time in two weeks I should be home from surgery. I will ask my breast care nurse however, I’m wondering a couple of things -
Pathology post lumpectomy (both sides) and sentinel node biopsy (one side) - how long does that take to come back? Is this where they classify things and that helps decide treatment (radiotherapy previously discussed but my surgeon is taking one thing at a time… surgery, pathology and then…).We have also discussed if she finds more when she’s there she’ll remove - and also no more than that and mastectomy without discussion (so that would mean additional surgery).I am staying overnight due to both sides but any comments, thoughts or details you can provide are really appreciated.
many thanks
Nicky 🌸 - Nicky123MemberThank you for your kindness @Afraser x
ps I understand rE collins st and I’m just at the start. - AfraserMember@Nicky123
Gradually, you’ll feel more confident about doing things, at least some things, your own way. I wore an underwire bra for a year after my mastectomy - large boobed, with a persistent seroma (not common!) and only found a good supportive non-wire bra when I was finally fitted for a proper prosthesis. My ‘normal’ bra was perfectly comfortable, didn’t impact at all on my scar and was seen by umpteen professionals!
The probing and poking goes on a bit - I once joked that if someone walked up to me in Collins Street and said, just slip off your things so we can have a look, I’d probably do
it without thinking!
A counsellor can be a a good idea - your medical team are focussed, properly, on your body. Some tlc for the emotions and the brain are in order too - in the scheme of things, a bit of chocolate is perfectly fine. - Nicky123Member@Abbydog and @Afraser thank you both for sharing your thoughts and experiences.Good news that the sozo is easy - that will make for a nice change after the testing poking and prodding (necessary I know) so far. They are talking rebaseline as you’ve said.I went to shop for some post surgery bras today and lost it in the change rooms. It was a lot of things all at once - how awful and unattractive the bra made me look and feel, how this was just the beginning and how I have always just taken my breasts for granted (maybe not the right words).
I have to apologise if this sounds insensitive - given all of your experiences. It’s just how I was feeling.I left that shop and marched myself to Kmart. I figured if I didn’t get it done today, I wouldn’t go back. I ended up finding some cheaper and ok (still not amazing but less surgical feeling) ones.I wondering if the bras are just about being front fastening and no underwire or do they need to be really supportive too (how much is enough?)? I already wear bras with no underwire and they are soft. I’ll follow up with the breast care nurse this week.It’s a roller coaster and I am sure this will be one of many times I feel like this. I’ll also consider seeing a Counsellor at some stage, I’d say.Ps I also bought a chocolate Easter rabbit at Kmart. I’ve been off chocolate since last year - so thought, this calls for it. I’m sure I sound silly!).Thank you both again,
Nicky 🌸 - AfraserMemberI didn’t have a base line test before surgery, would have been a good idea. I did get a bone density test before starting hormonal therapy, which was important. I had a mastectomy and lost 17 lymph nodes but found my arm movement recovered very quickly. Best to take it slowly to begin with but as you’ll find, no two people react to treatment the same way! Best wishes.
- AbbydogMemberYou are very fortunate to have met with Breast care nurse. I did have an early SOZO test. But it was done only as a baseline. I had it done post op Mastectomy but prior to discharge. I attend a lymphomas and physio clinic for laser and have my SOZO checked and arm measured. I find it reasuring, and if there are changes would deal with that then. The laser is supposed to speed healing.
The SOZO test is nothing worse than standing on something like a set of scales and your hands go on a ledge. You stand still like that for about 30seconds. They input information re weight and height DOB. You feel nothing.
Ask while at hospital if they can measure you, they may not offer.
I didn't have a dye test. Because I had already had a positive for cancer lymph glands biopsy prior to surgery. Seen on US. - Nicky123MemberMy breast care nurse called this week - what an amazing service and support. She was able to give a lot more information re the surgery and what to expect - and also that the ultrasound and dye injection appointment would likely last 3-4 hours (not the 1 hour of the actual ultrasound).Two members of the exec at work know now and they have been so supportive - this makes a big difference, particularly as I have only been in a new role for a couple of weeks (I’ve been at the org for 9 months).Can anyone comment on having a test pre surgery rE lymphoedema (Sozo test) to get a base line?
in other news, I have booked in a massage for Sunday PM to try and relax. Still exercising everyday.Thank you all in advance
Nicky - Nicky123MemberSuch great tips for me @arpie, thank you so much.There are things here I never would have thought of - including the pillow and help for more than 2 weeks.I have 2 weeks off and can work from home for as long as needed - which is so good.
I also came across a great free app to have family and friends help - struggling with asking but know I need to. It’s called, Gather my Crew. I can schedule tasks and people volunteer. I’m overwhelmed with everyone’s generosity already.I’m wondering what the sentinel node ultrasound and dye test the day before the main surgery will be like?Thanks again
nicky 🌸