30 days later and I feel confused

Update:
Inflammatory Breast cancer has been confirmed. 
I am T4??? 
I am booked in to get my port installed next Wednesday, then a 16 week, 2 stage chemo treatment the day after.
Mastectomy in 4 months, followed by more chemo and radiation.
I had a fantastic Breast Nurse called Debbie with me the whole way.
I waited 30 days and now I am preparing for an 18 month ride.
Thankyou everyone for your kind words and support. 

Wishing you well for your appointment tomorrow. Please let us know how it gies. Kath x

You are entitled to your reports and entitled to have your questions answered in a way that you can understand.  

I bought myself a zip up binder from Officeworks (then went back and bought the lever arch version as it wasn't big enough) and lots of plastic sleeves.  I've put dividers in for some sort of order and kept every document in this.  It makes it easy to find things and if necessary, I have been able to take the lot with me and not worry about bits falling out.

Won't you need the ultrasound disc at your appointment? Have they faxed across the results already ? The surgeon will need these.

I suspect  they will order a barrage of additional tests (like most of us had)  and most are happy to give you copies after explaining them. It really helps later when you want to revisit it all and understand it better. 

Hi @sjd_barra, I am sending you a private message, Rosie  

Gosh @sjd_barra  - I'd be getting in touch with your surgeon/Breast Care nurse (or GP if you can't reach them.)   

I hope our helpline helped you enough to get you thru.    

I make sure I get all the reports & try to put them with any films i am given as well.  I see my GP tomorrow for the
report on my 'anniversary' ultrasound from last Fri.  

I hope your discomfort and swelling is lessening by the minute ... take care, xxx

@sjd_barra,

I've only just seen your post and just wanted to say welcome.  The lovely ladies, as usual, have given you some good information already. 

 Yes,  the waiting just sux. Endless waiting for results, waiting for surgery, waiting for treatment and just a whole lot of waiting for doctors that are running late.  Once you see the surgeon hopefully things start moving along.

It is all very surreal at times.  You feel fine,(bar the ouchy boob) there is no sign of you being "sick" so to speak and yet somebody is telling you you have cancer.  Swinging from some kind of denial to absolute despair is very normal. 

You are entitled to a copy of all of your results.  The images probably aren't as important as the reports as most of us would have no idea of what we are actually looking at.  

It is a good idea to keep all your reports and results in one place so you can take them with you to appointments incase anything is needed.  If you have no luck with the doctors giving you copies ask your breast care nurse (if you have one) if she can get them for you.

It is handy to be able to refer back to them along the way as their is so much information to take in that remembering everything is near impossible.  A list of questions is a good idea and don't be afraid to ask anything even if you think it might be silly. I took to asking "Can you give me that in dumb terms please"  when the medico lingo was a bit confusing.

Remember, this is your body, your gig and you need information so you can make informed decisions along the way.

All the best lovely. Stay in touch.  We all "get it".

xoxoxox

Thankyou @SoldierCrab. 
I have spoken to a phone counselor.

hi Sjd_barra

I think that it might help if you spoke to the lovely helpline at BCNA 

BCNA Helpline 1800 500 258

If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.  

I am wondering about 2 things.
1. My boob is very, very swollen (almost twice the size of the other)
When I look at the area below my nipple and below my breast where most of swelling is, there is light bruising colour and pitting to the skin.
Now that I have seen it, I cannot unsee it. Can I ask the doctor to test for IBC or would they have done that when they confirmed IDC??
2. No-one has actually shown me any results. No mammogram images, no pathology reports. I have gotten all my information from just what I remember being told.
When I asked for copies, I was told that having them would make me fret and be depressed. I  cannot help feeling that they are putting their own bias on me.
I  think maybe the reason I don't want to tell anyone is because, other than a dramatic looking boob and a referral letter, I have no real belief myself.