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fairydust's avatar
fairydust
Member
8 years ago

When to have your ovaries removed

I saw my oncologist today. She is pressuring me to have my ovaries removed. I have the bracken 2 gene. I agree but....I have just finished a year of treatment. I may be going on to a trial with Peter Mac. I have hurt my shoulder and will be healed in a couple of months. The neuropathy  in my feet makes it hard to walk long distances
  The thought of another operation......Recovery time...no driving  ...Ughhh...
I am running out of energy. I want to be normal again for just a little while. Anyone had just their ovaries removed?
  • So true @fairydust - going from someone who hardly ever had to see her GP (except for needles when going overseas or the regular smear tests) to having monthly GP visits...and then all the specialists! It's a different world these days isn't it?!
  • Thanks@ primeck..@Zoffitel@nikkid......It cheered me up. I am more upset that it is another reminder I need to take steps to prevent cancer coming back. I just want to escape anywhere.
     My oncologist recommended rehab program . Great I cannot drive at the moment. I asked about plane travel and said probably a compression sleeve would be  good for me as due to lympth node removal I am prone to lymphodea....huh? I have yet to find out about the trial at Peter Mac.
    Then oncologist follow up appt....radiation appt follow up...breast surgeon follow up appt. Peter mac trial grrrrrrrrr .
    I am grateful for such a great team but I would love a year of no appointments. I know there are lovely ladies out there who are doing far worse then me. I send you my love and best wishes

  • I'm with @Zoffiel - I had both ovaries and fallopian tubes removed about a month ago (3 weeks before my DIEP Reconstruction). It was called a bilateral salpingo, oopherectomy, D&C and polypectomy! Kept my uterus....

    It was a day procedure, done laparoscopically (as described above)  and I was fine within a week. I was up and walking around within a couple of hours.

    I also got an album of very unusual photos of my insides from the surgeon! She took my statement that "I like to stay as informed as I can" to the limit :)

    Funnily enough, I didn't get the sore shoulder - just felt like I'd been literally kicked in the guts while doing 1000 sit-ups! I had lots of bruising but it subsided within 2 weeks. TBH today I don't feel any different than I have whilst being on Tamoxifen.....so it's not been a big deal for me physically.

    (Whilst I don't have the gene, I had to have one ovary and tube removed anyway because of a hydrosalpinx - a strange fluid build up. The gynaecologist was brilliant but urged me to think about having both sides removed because of the link between ovaries and BC and the fact that I could then take that cancer off the list of worries. It also meant that I don't have to check that ovary each year from now on. Seeing as my days of having kids are over, I agreed.)

    Nikki

  • I had mine out just before Christmas. Wasn't a big deal. Well, the last step into menopause is a doozy, but the operation itself didn't knock me around. I had a bit of pain in my shoulder for a day (from the gas they use to inflate your abdomen during surgery) and the stitches in my navel gave me the irrits until we pulled them out but apart from that it was fine. I was driving in a couple of days. I'm 53 BTW..
  • Hiya. I tested negative  but below is a link of a discussion  of women who tested positive and what they did. Hope this helps. I understand how hard all this is. I thought I was headed down the same path and was getting anxious not having my results as I figured I wanted to have the surgery sooner rather than getting well, being back at work etc and then being off again. That was how I was thinking anyway. Ovary and fallopian tube removal is a much smaller procedure than a hysterectomy, but can ubderstand hiw it feels to much. Take care. Kath x

    http://onlinenetwork.bcna.org.au/discussion/comment/90111#Comment_90111