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Nadi's avatar
Nadi
Member
7 years ago

What is this? BC was all behind me

I have been doing really well. I mean really, really well. Diagnosed Oct 2015, surgery chemo, radiation, 12 months Herceptin all over by Dec 2016. Finally got back to work full time more than a year ago. Full steam ahead. Hot flushes - damn annoying - ever present and fluctuate in number from week to week, but so much better than before. Doing a demanding job that I love working 50 hours plus a week which I also don't mind. 32 kgs weight loss post chemo maintained. Neuropathy and osteo arthritis pain from taxol being managed. Did big OS trip which was great. Had port removed. Wasn't thinking about BC at all. It was in the past. All over. All done. Finished. So long and thanks for all the fish. Really everything was great.

Then 5-6 weeks ago I started getting tired and didn't  quite feel like myself. This has since turned into fatigue. Knock-me-down-wipe-me-out-have-to-sleep-right-this-very-minute type of fatigue just like back when I was doing chemo. Dragged myself around for weeks and then was sent home from work because I literally fell asleep at my desk. Totally not the new me. Had to go on reduced work hours which is hurting my pay packet. 

Blood tests show my billirubin levels are high but I am not jaundiced.  Blood pressure 160/120. Stomach bloated but not firm. Still my GP thinks that it could all be nothing serious as sometimes liver function tests show weird things, my blood pressure has been on the high side in the past,  and my BC was node negative, so we'll test again in 2 weeks.

Then today the cancer psychiatrist mentioned  that a lot of women similar to me who are forced into menopause by chemo often report a return of the same exhaustion they felt during treatment sometimes 2 or more years after treatment. Really??? I have never heard this. I mean I knew that the hot flushes can linger or come and go for a long time, I also heard that some women never quite return back to the way they were, but I don't think I have ever heard anyone mention their fatigue had returned after they have enjoyed a long period without it.

Just wondering if this sounds right? Have others experienced a return of fatigue so long after treatment finished and after doing well for a period of time? If so, is there something that made it better or go away? I so need to get my mojo back. Any advice is appreciated.

P.S. I am really careful about what I eat (good, sensible food, low-no sugar, minimal alcohol), am maintaining good gut health with diet and a probiotic, have reasonable activity given my arthritis, and tests show good iron, Vitamin D etc etc.
  • @Nadi 
    Hi!  nice to have you back on the forum but not for the reasons you mention!  
    Fatigue was your "Achilles heel".  50 hours plus/week - do you think that is pushing yourself too much?  Maybe your body is saying hey remember me the one that has just about recovered but not totally?
    Fatigue still plagues me - just when I think I am kicking goals, wham she hits again!
    Post mastectomy syndrome has hit me recently  as well as and it is coming up 3 years!  My surgeon said that sometimes it can hit at the 4 year mark!
    Our bodies certainly have been through the wringer and every now and then they want to remind us to pace ourselves accordingly.
    Have you been to an Exercise Physiologist?  This could help with regaining your stamina - your weight loss is wonderful!
    I hope all your medical tests come up with nothing more than rest is needed, blood pressure settles somewhere near the normal range and then you can pace yourself accordingly.
    Take care 

  • No advice, just best wishes from me. What a bugger for the fatigue to hit you like this. Hope you get it sorted very soon.