Disconnect is definitely a good description. I never felt like an outsider but there is this weird kind of feeling at the beginning that you are changed and nobody can really understand. An imposter in your own body and world if that makes any sense. It really will get better the further on you get down the track.
At the beginning I would put a ban on BC talk at any social event. That went for myself and any guests. I would accept the how are you doing question and answer "getting there, but I really don't want to talk about it tonight".
I actually longed for the normality of social life. If I could just have those few hours of fun and laughter without over thinking anything it kept me going.
First world problems used to piss me off also. I think that is quite normal given what we have been through. I would hear people talking about how "fat" they were (they weren't) in their new dress, how the hair colour wasn't quite what they expected from the hair dresser, how terrible that photo of them on facebook was. etc etc. I am able to tolerate it quite well now up to a point.
If it really starts to tick you off the line is "Gee that's terrible. Well at least nobody's got cancer right?" You will get instant crickets and they will disperse rather quickly and slink off.
Nobody ever touched me or rubbed my arm, but I guess that's because I get a pretty good "don't even F$%#&ng think about talking to me" look on my face. You can practice that with the people that sit outside of woolies every day looking for donations. LOL.
I love the "Gee your looking great". Standard response. Thanks. Why did I look like crap before cancer?
I find sarcasm is always a good option.
Hope you feel better soon @kitkatb
xoxoxo