Hi all, how many of US will be in Sydney? We must try to snatch some time away for a drink or two. Anyone bringing their spouses? I am. It will be fun, and exciting, and empowering! Mandy

Hi there Mandy, yes we are in ...."we" being Leonie, Ros, Ann, Kerry, Nic, hopefully Moira and Lee and of course the two of us !!!! Ros and I were thinking somewhere Wednesday night depending when everyone arrives. Where are you staying? ... Got my accom advice - a "share" room at Metro Hotel Sydney Central Pitt Street. Hope it's fairly close to where the conference is ... be terrible to get lost :) Hope you are enjoying your break Luv Shirl x0x

I am ceratinly in for dinner Wednesday. Not sure where I have been put yet, we can contact each other via mobile when there, Mine is 0400 800 499 xx

Hi Ladies. I just let Marita know, via email, that sadly, crapily, I'm not going to be able to make Sydney. I'll be 4 weeks post-op. I think you know I found out I have brca1 mutation and was due for bilateral mastectomy with recon last Wednesday. Due to Pneumonia it has been put off untill September 26. I'm having the tissue expanders and lat dorsi. I can't explain Properly how upset I am to miss the conference and to miss seeing you girls, my gorgeous, special bcna buddies. Bcna and breast cancer brought us together and it really hurts to be unable to be there with you. Tomorrow I get back fna result from a breast lump. Ultrasound wasn't alarming but I needed to make sure when I found out That surgery was to be postponed. I'll let you know. I want to know EVERYthing you get up to. Xxxxxxxxx

Lee I can imagine how you must be feeling .... I was worried for a while I wasn't going to be able to make it after my dramas in May and I was devastated. Things have looked up however and I am incontrol of the apparatus and monitoring what I eat (though there are times that willpower goes to sleep and greed takes over). My 6 months are up in October but I told the specialist surgery would have to wait till November because I was busy in Oct. He just laughe and said that's ok !!! The most important thing now is concentrate on yourself ... after all YOU are your number one prioity at the moment. You'll come thru this with flying colours .... you'll have all of us in your corner ... supporting you like some demented cheer squad!!!! The thought and vision of that is a bit scary isn't it but I know your reading this and laughing. I've marked Sept 26 on the calender and will be sending out positive vibes your way. Take care and try not to worry too much - I know that's easy for me to say but will be thinking of you Luv Shirl x0x0x

Sydney together | BCNA Online Network

57 Replies

Custard
Member
13 years ago
Ros- passioinfruit by name and nature eh? Sylk is kiwi fruit- I wonder how people find these things work! lol.

Yes all, we support each other cos we care and it is a 21st century wonderful thing to be able to do. We have to work out the total kilometres that divide us... but they don't matter one bit.

Strength to Strength !!
Ann1
Member
13 years ago
We couldn't have done this 20 years ago!! How wonderful to be able to communicate openly and instantly with each other, sharing and giving support at distance. I know we had the telephone, but it wouldn't have been a shared conversation. I hope we all feel that anything can be said without judgement.

I am so grateful to know you all, xxxxxAnn
Roslyn_Mitchell
Member
13 years ago
I could see all the messages building up on my emails, have only jusgt had the chance to read.

Very glad the Lee can talk to Kerrie if needed, what a shitty time you have had of it. I remember wondering where the happy girl went during chemo- I really missed euphoria, something you just cant do when faced with such huge challenges ahead. Lee hang in there, love seeing all your lovely pics on FB, and look at you - still out raising awareness in the midst of a very ordinary time (Reminds me of someone else Kerrie). Your are so inspiring, both of you girls, just absolutely INSPIRING !!

Leonie, good on you. The drugs are shit, and there are no guarrantees, a decision that you wouldnt have made lightly.

Am sure you remember that after many many attempts and a lot of guilt and soul searching I too had to bail - my oncologist encouraged it in the end - in fact he was against my last attempt at managing the drugs. Maybe later on you can try again, I will be for sure, am not giving up completely.

As for our sex lives- dont forget PJUR from the Passionfruit ? Online shop in Melbourne, remarkable stuff for sex, makes everything so slippery, you nearly get launched out of bed ba ha ha

Remember we are all different - that is what makes each and everyone of us unique.

Know all of you who are unable to make it that you will be there in spirit, in our spirits, it wont be the same without you, but just as much as it will be hard it is only a few days in the big scheme of things, and am guessing next year there will be a MCG Field of Women Live and WE WILL ALL BE THERE TOGETHER AGAIN :) all ponchoed up.

Love to you all ALWAYS, I feel so terribly blessed

ros xoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxooxxooxoxoxoxoxoxoxooxoxoxoxo
Roslyn_Mitchell
Member
13 years ago
I could see all the messages building up on my emails, have only jusgt had the chance to read.

Very glad the Lee can talk to Kerrie if needed, what a shitty time you have had of it. I remember wondering where the happy girl went during chemo- I really missed euphoria, something you just cant do when faced with such huge challenges ahead. Lee hang in there, love seeing all your lovely pics on FB, and look at you - still out raising awareness in the midst of a very ordinary time (Reminds me of someone else Kerrie). Your are so inspiring, both of you girls, just absolutely INSPIRING !!

Leonie, good on you. The drugs are shit, and there are no guarrantees, a decision that you wouldnt have made lightly.

Am sure you remember that after many many attempts and a lot of guilt and soul searching I too had to bail - my oncologist encouraged it in the end - in fact he was against my last attempt at managing the drugs. Maybe later on you can try again, I will be for sure, am not giving up completely.

As for our sex lives- dont forget PJUR from the Passionfruit ? Online shop in Melbourne, remarkable stuff for sex, makes everything so slippery, you nearly get launched out of bed ba ha ha

Remember we are all different - that is what makes each and everyone of us unique.

Know all of you who are unable to make it that you will be there in spirit, in our spirits, it wont be the same without you, but just as much as it will be hard it is only a few days in the big scheme of things, and am guessing next year there will be a MCG Field of Women Live and WE WILL ALL BE THERE TOGETHER AGAIN :) all ponchoed up.

Love to you all ALWAYS, I feel so terribly blessed

ros xoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxooxxooxoxoxoxoxoxoxooxoxoxoxo
Kerries
Member
13 years ago
Hi ladies

Great to hear your news Leonie hope all goes well with the next stage.

Lee, if you need to have a chat let me know. I had a double mastectomy back in 2007 & haven't had the girls replaced & actually haven't missed them at all. My oncologist has also chatted to me about having my ovaries removed ~ in the process of thinking about it at the moment. I know where you are at, I had a bit of a bad patch just recently. I think being faced with cancer progressing to my bones & losing my dad to collorectal cancer just all got to me. I hope you can find the new & improved "old Lee" soon. It may seem like an impossible task at the moment but hang in there & you will work through it in you own time.

Take care all ~ Kezz