Sydney together

Hi ladies

Great to hear your news Leonie hope all goes well with the next stage.

Lee, if you need to have a chat let me know. I had a double mastectomy back in 2007 & haven't had the girls replaced & actually haven't missed them at all. My oncologist has also chatted to me about having my ovaries removed ~ in the process of thinking about it at the moment.  I know where you are at, I had a bit of a bad patch just recently. I think being faced with cancer progressing to my bones & losing my dad to collorectal cancer just all got to me. I hope you can find the new & improved "old Lee" soon. It may seem like an impossible task at the moment but hang in there & you will work through it in you own time.

Take care all ~ Kezz

Hi ladies

Great to hear your news Leonie hope all goes well with the next stage.

Lee, if you need to have a chat let me know. I had a double mastectomy back in 2007 & haven't had the girls replaced & actually haven't missed them at all. My oncologist has also chatted to me about having my ovaries removed ~ in the process of thinking about it at the moment.  I know where you are at, I had a bit of a bad patch just recently. I think being faced with cancer progressing to my bones & losing my dad to collorectal cancer just all got to me. I hope you can find the new & improved "old Lee" soon. It may seem like an impossible task at the moment but hang in there & you will work through it in you own time.

Take care all ~ Kezz

AH dearest Leonie, so it is the "old degenerative spine changes" !! SO good to be normal, even if we are ageing. The other choice is not enticing.

Lee- we think of you all the time! Ease off on the grog, though hehe.

Sunday cheers to all. xx

Big deceision Leonie, but I can see why you would choose it. So many of us feel crap in so many ways when on Arimidex. I have the bone density of a 79 year old now and have had many other 'side effects'. I feel instead of actually being 56, some days i do feel 76! Not to mention the effects on our sex life:(

Good you have all the tests so you can feel good about taking the break from it. I have until February next year until my 5 years are up. Can't tell you how much I am looking forward to that day. We are lucky to have mediaction to help us with our journey, but sometimes I feel we are at the very early stages with the drugs. Almost like the first early experiments with other long gone drugs. 

I really hope that you will find a positive change ex Arimidex. It will give me hope too. Can't tell you how much you and all the others mean to me, just to know you are there. X

Hi my wonderful pink sisters.  Yesterday I rang my specialis's office (they were just about to call me) to find out the results of the CT scan.  All clear - what a relief (Bill could see a change in me instantly even though I thought that I was not showing any signs of worry)  I still have the back pain but what tha............I can take it a whole lot better now knowing that the chiropractor can help me when I go home.  I will wait to have it all explained to me but I think it must be degenerative spine issues. I will definately be working closely with her to get my old self back.  Never had any cortizone injections before but will do anything to get to Sydney and of course my fifth wedding anniversary celebrations the week before.  It sure is about quality of life - not only quantity.  On that note, I made a decision this morning that today is the last day of Arimidex for 2012 for me.  The Chiropractor found that I have practically no muscle strength and of course I ache all over most of the time.  I will give it a "go" and see if I can build up my strength without the side effects of Arimidex.  If it works to help my back then I will make another decision about the Arimidex in 2013.  I have tried lots of tests and interventions to elevate my aches and pains and the same conclusion always shows up - Arimidex.   Taking it out of the equation for 3 months may give me some other results.  Love you girls forever - meeting you all has been my blessing in life. XLeonie

Hi my wonderful pink sisters.  Yesterday I rang my specialis's office (they were just about to call me) to find out the results of the CT scan.  All clear - what a relief (Bill could see a change in me instantly even though I thought that I was not showing any signs of worry)  I still have the back pain but what tha............I can take it a whole lot better now knowing that the chiropractor can help me when I go home.  I will wait to have it all explained to me but I think it must be degenerative spine issues. I will definately be working closely with her to get my old self back.  Never had any cortizone injections before but will do anything to get to Sydney and of course my fifth wedding anniversary celebrations the week before.  It sure is about quality of life - not only quantity.  On that note, I made a decision this morning that today is the last day of Arimidex for 2012 for me.  The Chiropractor found that I have practically no muscle strength and of course I ache all over most of the time.  I will give it a "go" and see if I can build up my strength without the side effects of Arimidex.  If it works to help my back then I will make another decision about the Arimidex in 2013.  I have tried lots of tests and interventions to elevate my aches and pains and the same conclusion always shows up - Arimidex.   Taking it out of the equation for 3 months may give me some other results.  Love you girls forever - meeting you all has been my blessing in life. XLeonie

You are such a little trouper.  Small in stature seems to build strength.  We will all be thinking of you on 26th and sending you love, support, strength and whatever else that you might need to "mend" you as quickly as possible.  Your amazing smile just emits strength and happiness - even if it isn't happiness for yourself you are sending it out to others.  We will miss you but will also know that next time we see you and have the opportunity of hugs that you will be "freeer" and SHINING as the old Lee that we have come to love.  You will never be alone now that you have US. XLeonie  PS  I am sailing along okay now that I know that my back pain is not coming from any sinister.

We try to be up and positive most days, but then some things are just not fair! Lee, you are such a bubbley fun loving person. I remember  at the BCNA events ,when ever I looked your way,  there was always a huge smile on your face. You were enjoying every moment bonding with the girls. We will miss you in Sydney. You may be far away in distance, but you are there beside us in our hearts.

I will be thinking of you on the 26th and sending you healing thoughts for a speady recovery. XXXXX Ann

We try to be up and positive most days, but then some things are just not fair! Lee, you are such a bubbley fun loving person. I remember  at the BCNA events ,when ever I looked your way,  there was always a huge smile on your face. You were enjoying every moment bonding with the girls. We will miss you in Sydney. You may be far away in distance, but you are there beside us in our hearts.

I will be thinking of you on the 26th and sending you healing thoughts for a speady recovery. XXXXX Ann

Hello my wonderful, distant :-( friends. I've just had a quick read through all these messages above. I didn't hear about the bus crash. That is horrible and so unfair. I can't believe it.

Leonie, how are you now?   You are going through so much. I'm glad the other ladies have been able to keep in touch with you and send loving thoughts your way. Lots of love from me too. XXXXXX

I haven't been on BCNA for a long time. I've been dealing with grief and stress lately. I'm working hard at finding " the old Lee". She pops her head out here and there. Wine tends to help.  I hope she comes home to stay soon!

My double mastectomiy is booked for September 26th. Having lat dorsi and saline expanders. Not a whole lot to look forward to in the short-time but next year will just have to make up for it!

Ovaries and tubes next term...maybe hysterectomy. Any advice from those who have walked this path previously?

I wish I could be there in Sydney. I would love to see you all and hug you all again!

Take care of each other, like I know you do anyway!

Love, Me. XXX