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JJoy's avatar
JJoy
Member
14 years ago

Radiotherapy and a whinge in general!

Hi Ladies - Well yesterday we travelled and went to the centre for me to have my 'radiotherapy plan' - Silly me, I thought a 'plan' was something you sat down and negotiated - WRONG!  We set off in the car and drove the one and a half hours journey - Oh, did I forget to mention that my mother-in-law had come interstate for a visit and it was deemed that 'we would meet' at the cancer centre - I had this stupid notion we would meet up in a park or something, but no! I got that really, really wrong - I will get back to that later.   We arrived at the cancer place and I got told to take a seat, then a nice chap came out and told me his name and to follow him - oh! and his nice little friend (who I think was in training) any way, they were pleasant fellows and they led me to a room and told me to get changed into a gown - I then went into a room and I had to lay on a bed with my arm above my head....and they proceeded to draw on my boob (that had the mastectomy) with some kind of CRAYON - As usual, because I was nervous, I joked and had them all chuckling (four people in the room at one stage) but hey! you get that.  Then I got to go and chat to a nurse (you know 'emotional stuff'), she was very nice and handed me back to the 'guys' who then led me to an XRay unit.....I had to lay on a table, and there were only three guys this time - One of the lovely (nice looking) gentlemen handed me a sheet so as I could 'kind of cover up my otherwise 'normal' boob' - he said, "We appreciate that you might like to be covered up a bit"  I remarked "Darling, when you walk into a hospital, you leave your dignity at the door" - they thought that this was amusing (that was good - for me) So then they told me what they had to do......the upshot is they have to get everything in alignment for the radiotherapy, cool I thought - so then they proceeded to draw on my 'boob' - (half boob), (call it what you will) - in TEXTA - that was ok; They have to do what they have to do - then they strapped wires around their drawings and proceeded to go ahead with the cat scan.  It wasn't over then I tell you, they had to put INK on me for the tattoo......OK! - Crayon, texta, ink; I went home folks, feeling like I had been in some kind of weird Play School!  I have to give them credit, they were lovely.  I then went into the 'change room' and got changed back into my clothes - Oops! I left my scarf in the XRay room - I turned to one of the attendants and as I looked around (bald head! - hullo!) I saw to my horror, there was my brother-in-law, and my mother-in-law all smiles and ready to greet me! Is it just me? but I wanted to scoot! I felt so........EXPOSED!  I was really cheesed off! But good-ol' Josie walked up and hugged and said hi........bla bla bla.   (I don't know if it wasn't for this 'beanie' on my head, I would be happy if no one knew my condition).....it's so 'personal'.............I had a heart-to-heart chat with hubby tonight, had to tell him, no, don't want mother-in-law here right now, but its school holidays and airfares and trains are all out of kilter (another story) so I have her here for another week - this is really hard for me.  I am not a horrible person, but when I have a conversation with a person - I like to have a point!  This is irrelevant to my mother-in-law!  But I have to be nice, she lives interstate (but boy she sure gets those frequent flyers!) I have had her with us three times in 9 months - folks! I have had easier pregnancies!  But! and I emphasise BUT; I have to be nice - the hard part is I DONT feel very 'nice' at the moment.  There are days I want to be grumpy, and isolate myself - and my husband is accustomed to this, but with other people it isn't so easy.  I am not up to 'entertaining' I am not up to being 'pleasant' and it is a bloody hard ask!............at the moment!  I have to go and stay in another town for four and a half weeks - and the town is FREEZING! it snows there!  I don't want to do it!  BUT I have to 'suck it up' - bugger, bugger, bugger!  I told my husband all these things, and God bless him, he understood - I told him I am so bloody scared, I am coming across 'all brave & doing well' but deep inside I am a trembling jelly!  I tell every one 'baby steps' and I have to 'focus' on this - quite frankly I am depressed - I hate going for blood tests and the only arm they can use is now just about 'shot to pieces' - the oncology nurses said if it gets too bad they can take it from the portacath - well when you have two nurses 'digging' at your arm and finally having to 'bandage' it - I go home and have a cry because it is getting me down - Yes, I admit it, I am depressed! Yes, I have emailed my social worker - yes, I do all the right things - and yes I will keep going - I have another 10 months of Herceptin (intraveinously) and yes, each one has to have a blood test prior - sigh!, whinge, whinge, whinge! This has been going on since November last year, operations, tests, bla bla - and yes it gets you down from time to time - at the moment I am on a 'downer' - please ladies bear with me - I am in total 'sookie lah-lah' mode.  So as I keep going on to every one - 'baby steps' - but maybe I should add, 'sometimes you trip up' - it's to be expected, and tomorrow is another day - big hugs to all x x x Josie

11 Replies

  • ah, Josie, what a beautiful post. In all your pain and frustration, what shines through is your gorgeous humour. hang in there babe.

    I was wondering, what's the worst thing that can happen if you crack a case of the grumps with yr m-in-law? Maybe if you just did an emotional stack (instead of sucking it up) she'd understand? Esp if your husband picked up the pieces afterwards. I don't know your m-in-law, of course, but sometimes even ppl we know well can surprise us, and maybe she's burbling on pointlessly in an effort to (somehow) be 'comforting'. Or maybe she's just making life (even more) difficult... Dunno.  In any case, for the time being it's YOU FIRST, everyone else take a number, and bugger the consequences.

    Go well,
    Heather