Forum Discussion
New Group for young women, mums.
Calling out for other young women to join in conversation and sharing ideas and experiences that may us get through breast cancer and treatment and coping with our busy lives with work, partners, friends and young families.
I feel that I am not represented out there (early 40's young family) and hope to connect with others so together we can work thru this crazy challenge and maze of treatments and regain our recent health and control of our lives.
Love to hear from you :-)
Lee
28 Replies
Hi Lee,
I was diagnosed at 36 with 3 young children. I have just set up a Facebook group called Young Families with Breast Cancer and am trying to organise some get togethers, so we can become an official group, over in the Frankston area. I note that you are based in Eltham, so was thinking given the fact that both our groups are working towards the same aim at helping women our own age, perhaps we can work together towards this.
Narelle
- Thank you for your wishes. I'll stay in touch. I too find docs can be very persuasive but my theory is they see this every day. Feeling a bit more positive...after reading a few stories What are your longer lasting side effects, I also took tamoxifen for 3 years other than loss of libido and mood swings was I was ok but hubby wasn't....lol Thank you to all for sharing your experiences. Stay strong xx
- Woow ! Only 3 % benefit for chemo ? I was told with chemoand tamoxifen I would be 15 % less likely. I only took tamoxifen for 4 months and wish I didn't have chemo as the lasting side effects for me have been devestating and fill me with regret and anger. But that's me. Docs don't know, or wontvsuggest who will get what side effects and how long they will last for. I will support you thru whichever path you take as the docs are incredibly persuasive but please investigate as much as you can. Wishing and sending you much strength and confidence to take control of your treatment and life now and throughout your journey xx
- Hi Lee, Thank you for your reply. I will ask all the questions i can think of to avoid chemo. i have a 3% benefit i am told and I should do everything I can to avoid the risk. I took the zoladex for about 4 months during my AC treatment, I was triple negative so oestrogen wasn't an issue it was able to have babies. The zoladex was pretty bad night sweats, moodiness awake at night on top of all the chemo side effects. Thinking back now 12 years later I'm glad I went through it as I now have 2 beautiful children. My periods return straight after my next zoladex injection was due. I have since removed my ovaries and tubes as a precaution given i have the BRAC1 and went to instant menopause. First week felt strange mood wise however overall not as bad as zoladex, winter was fine no hot sweats summer was a little restless but nowhere as bad as the zoladex. Good luck!!
Its a great goal to aim to keep working. Lots of people do, even if they have to have a day off here or there. its a great distraction and source of moral support. I had some rough moments but breezed through chemo really. but be aware it doesnt just go away after chemo sessions are finished.
Best wishes and keep us up to date with how your feeling and let us know if you have any crazy questions. we are here to say yes that happened to us too :-)
:-) x
Oh No, I cant imagine a second go at all this. Question whether you need chemo. The no hair thing is everywhere. They are churning them through chemo now a days so please investigate whether you really need chemo and all the side effects (the could be long term) My hair has now grown back to a decent legnth and can just style it (curls are out of control) but it wasnt about losing the hair. it was losing the oestrogen that i have suffered with so i cant imagine how you have been going with the zoladex. my cancer was hormone receptive and i want my periods and oestrogen back.
Will your work be flexible ? I kept at my work as much as i could - definately a distraction from what was going on and a huge social and emotonal support.
and your kids will be awesome. mine are younger 4 1/2 and 2 1/2 and they are so resiliant and a huge source of love and bliss. cuddles are pretty tight now.
What ever you decide - you can do it - keep in touch :-) especially if you need a winge xx
Hi Everyone, got the news yesterday oncologists recommends chemo. Was 26years old at first diagnosis had lumpectomy, AC chemo and radiotherapy. Now 12 years later at age of 39 am now knowing that i have BRC1 and have a 5 yr old and 9 yr old (zoladex worked) have BC again on the other breast, Had a lumpectomy 2 weeks ago, lymph nodes clear, just booked my dbble mastetctomy and found out that i need to do chemo again, dont think i can do it with kids, FT work, family- no hair, seemed to have found some inner strength the first time went to work wiht no hair etc, cant see to feel positive this time not happy...anyone felt the same?.
- Hi Lee and everyone else, I'm nearly 43 and have a 15 yo daughter and 11 yo son. I have also just been diagnosed, and have had a mastectomy and auxiliary clearance in late august. I met my oncologist today and start chemo on Monday . I can't even remember what chemo I'm having, will have to wait for my education session. I have been told I will also have herceptin for a year and radiotherapy. Got to say , it feels huge right now, but I'm happy to be starting. I just hope I can maintain working throughout this time, I hope I'm not being unrealistic , will have to wait and see. X
- Hi Lee and everyone else, I'm nearly 43 and have a 15 yo daughter and 11 yo son. I have also just been diagnosed, and have had a mastectomy and auxiliary clearance in late august. I met my oncologist today and start chemo on Monday . I can't even remember what chemo I'm having, will have to wait for my education session. I have been told I will also have herceptin for a year and radiotherapy. Got to say , it feels huge right now, but I'm happy to be starting. I just hope I can maintain working throughout this time, I hope I'm not being unrealistic , will have to wait and see. X
Hi Lee,
I am 43 and have 2 teenage children. I was diagnosed at the end of June. I had a lumpectomy followed by 12 weeks of TC chemo and am about to start 6 weeks of radiotherapy at the end of Oct. When that is all finished I will be starting tamoxifen.
I have had great support from my mum. She helped out around the home during the weeks directly after chemo. The kids have had to miss a few after school groups they are in, over the course of the chemo. They have accepted this ok but these should get back to normal now that chemo is finishing.
I have had trouble getting used to hot flushes from chemo induced menopause and am worried about how I will cope once on tamoxifen. I am starting an Encore program tomorrow and hoping that I can start to improve my health and fitness and maybe this may help.
I wish everyone well on their journey and look forward to chating,
Michelle
