Forum Discussion
Lara_O_Perth
13 years agoMember
Need some positive stories
I am a 43 yr old pediatric nurse. I have a supportive husband and two fantastic kids, daughter nearly 8yrs and son 10yrs. I was diagnosed with minimum stage 2 breast cancer last Wednesday the 26th June. I am having a lumpectomy on the 5th July and am petrified that there will be cancer in my lymph nodes. My nursing experiences are mainly in intensive care have given me mainly fatal stories about cancer and I am really struggling to remain positive. I need survival stories from those with a similar diagnosis to give me some hope. I wish right now I new nothing medical at all because my thoughts are torturing me and I am struggling to sleep even with temazepam .
Can anyone offer me some positive stories please.
Lara
xxx
43 Replies
- Lara_O_PerthMemberHi Sue, I spoke to mum today and said you caught up, well done. I can't wait to see my Mum, just waiting to here when my chemo starts and then she'll be on a flight to come and look after all of us. I remember Sargeants very well, I was always in and out of there say hello to Vicky for me. I look forward to some house photos but if its too hard don't worry about it too much. I was talking to an old Tassie school friend today and we were best buddies and we were reminicing about all the fun we had at Willovale, we both agreed that place made our childhood brilliant. Thanks for bringing back great memories Sue. Love Lara
Hi again Lara! Reading your latest post I know what you are feeling towards all the medical practitioners discussing your case and you not being there yourself. But i would imagine it being difficult for you especially when you work in the medical field yourself! I remember about 15 years ago when I was diagnosed with a growth on my right adrenal gland a group of Fremantle Hospital specialists having a meeting about my case and working towards a solution. But I to was frustrated that I couldn't be there to help me get a better understanding of my diagnosis and prognosis. I felt like a guinea pig really! It stinks but I guess we just have to have faith in them as hard as that may be. In the end the decision not to remove the growth was the right one as it was found to be benign and has since shrunk considerably. Brain distraction sounds like a good idea! Works for me as well!
oOo Vicki R
- susie_QMemberVicky Walker, remembers Little Lara, and send her best wishes to you. Vicky works in Sargents supermarket.
- Lara_O_PerthMemberI don't get meet my Oncologist until 29th July which is still anote week away and I feel like I have been waiting for ages already. I know the BC Specialist Dr Team is discussing my case this week and weighing up the pros and cons of +/- more lymph node surgery, type of chemo regime, -/+ radiotherapy regime given my plan for bilateral mastec's and recon. etc after Chemo. Oh I So So want to be a fly on the wall during that discussion! I have sat in on similar meetings at work and I know there is so much to be learned by these meetings and they can often include quite heated discussions if there is a conflict of views....that's the bits I want to know about. So all in all I am really crap at being a patient and not being nurse. I am really struggling to have faith in the decisions that will be made about my treatment when I don't know how they arrived at them. This is my control freak rearing is ugly head, Hmmm... what to do other than write down yet another five pages of questions for those Dr's unfortunately that won't fill my week so its good I'm back to work this week to distract my brain. Love to all Lara x
- Lara_O_PerthMemberI don't get meet my Oncologist until 29th July which is still anote week away and I feel like I have been waiting for ages already. I know the BC Specialist Dr Team is discussing my case this week and weighing up the pros and cons of +/- more lymph node surgery, type of chemo regime, -/+ radiotherapy regime given my plan for bilateral mastec's and recon. etc after Chemo. Oh I So So want to be a fly on the wall during that discussion! I have sat in on similar meetings at work and I know there is so much to be learned by these meetings and they can often include quite heated discussions if there is a conflict of views....that's the bits I want to know about. So all in all I am really crap at being a patient and not being nurse. I am really struggling to have faith in the decisions that will be made about my treatment when I don't know how they arrived at them. This is my control freak rearing is ugly head, Hmmm... what to do other than write down yet another five pages of questions for those Dr's unfortunately that won't fill my week so its good I'm back to work this week to distract my brain. Love to all Lara x
- susie_QMemberI am not sure who lives in the house now, but a few years ago a lovely couple had it and they opened up the gardens for an Australia Day celebration and raised heaps of money, it was a great day. I will call in sometime and ask if I can take some snaps. Will let you know when I have them and we can exchange email to send them thru. Not sure who is around your age and still living here. .Did you know the Ballot girls from West Ridgley?. Throw some names at me and I will find out if I can where they might be. this is soo exciting, I might even try and give your mum a call.
- Lara_O_PerthMemberWow!!! How amazing!! If you happen to know who lives in our old house could you ask if you could take a picture of it to send to me. I had many happy memories growing up there, brings tears just thinking about that place. As a kid I wanted to live there forever, would now too if I could run a farm. My Mum lives on Lobster Creek Road in Ulverstone, on a farm with her husband who she married after I was married (he keeps her on a short least, so I don't really have time for him) her surname now is Clifford. Wish I could meet you. I wonder if there is anyone who remembers me in Ridgley now. If there is I don't mind at all if you tell them about my BC as that's how you know me today. Lara xxxxx
- susie_QMemberHi again, my name is Sue King, I have worked at the Primary School for 32 years. This may jog yre mums memory. Xoxoxo
- susie_QMemberOhhh Lara, I am sitting here in tears....can't believe this....it is unreal...I still live in Ridgley and Yes Yes I do know your mum Carole, it was quite sad when she moved and I often wonder where she went to. She may not remember me but say Hi anyway.... Gosh I still can't believe this. Where is your mum living now? Hang in there Girl, a tough time ahead but lots of positives as well.Our little "town" hasn't changed to much since you lived here, a few more houses and the corner shop near the school burnt down last year, the Post Office is now in the Grocery shop, but other than, still much the same...We live on the road just behind the school.Love and country hugsSue.
- Lara_O_PerthMemberoops almost posted same message twice