Help I'm desperate

I hope you have been successful reapplying for the human race but at this stage I am not sure if my answers are right for you Andrew so just making a comment I'll suggest something we as carers are also indirectly affected. I mean what was you ntention going to a cancer conference? Was it medical or a free information seminar organised by an org? If was medcally organised surely is restricted to professionals if it was organised by an assoc then it was plain stupid and ignorant from the organisers to stopping you from going because a cancer is a cancer no matter where it first originates.

The label bc is normally used to assign the origin of the cancer and designate a treating doctor or group as primary care doctor but that is not written in stone it is the way a specfic patient is filed in the system so statistics can be gathered and clinical studies developed but then again bc is not exclusive to women only a few man have developed bc as well very rare but it has happened. Much like secondaries too they may be totally unrelated to the orignal cancer just theymoved affecting other parts of the body yet the person is referred to the same oncologyst who then refers the patient to a different cliniic. Case in point my wife first develop ovarian cancer then she had a secondary in her breast a few years later yet she is still an ovarian cancer patient inspite of having been operated for bone cancer by an orthopeadic surgeon she still remains ovarian cancer patient.

IN relation to carers services, respite and so on you may refer to http://www.carersaustralia.com.au/?/article/view/via:17:308

The Salvos also offer support

http://salvos.org.au/need-help/family-and-personal-issues/telephone-counselling.php

Unfortunately I do not agree that the medicos have the crystal ball or fully understand the disease the medical profession just touches the tip of the iceberg and moder medicine insipte of its advancements there is a long way to go yet. Many are doing their best others just pay attention but they do not go out of their way to solve a case. May be is because they have so many patients a day to see so they may overlook some patients investigations  (I can prove this to anyone any time and that is the real value of carers) it also much depends of the technology available at treatment time. If you ever heard the words "All care but no resposibility" that applies to hospitals and auxiliary services are just not there in many cases there is a big void between discharge and after care follow ups if any and that where hospitals fail.

I do not know you and your wife entitlements in regard to after care if you receive any benefits like my wife does she is on permanent disability pension or DSP and myself I'm also a carer with a condition I have lymphoedema. Bugger if I know where it came from in the first place because it affects women who have been treated with bc. My Oedema was quite extreme as it included the whole body I was unable to breath properly move or walk even went to my eyes. Suddenly one day it began to recede so now I am much better I still have many issues with my wife to deal with as she may refuse further treatment if ever comes to that.