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JJoy's avatar
JJoy
Member
15 years ago

Fed up!

Well ladies, I would bang my head against the wall, but the wall would probably break.  I am set for my next Chemo on Wednesday - and my oncologist wants me to start Herceptin.  The thing is, I had heart surgery as a child - so they did an ultrasound on the heart - the results were heart function of 45% - it has to be at least 50% for the Herceptin, so now there is a mad rush to test and re test, because another test showed 60% - I only found this out today - have already been up to the hospital to have the heart monitor put on for 24 hours - in the meantime I find we have to go to a major town (an hour and a half drive there) after I have the monitor removed tomorrow for another ultrasound on the heart (sigh) all this travelling! I get so tired - I have my mother-in-law coming for a visit and will arrive in about half an hour - I hope she realises we haven't time for 'sight seeing' - its so full on! I feel like I am about to explode! Yesterday was bad enough when I had an attack of the 'sads' - I am so sick of being prodded, poked, stuck with needles, nudged, fudged, X-Rayed until I glow in the dark..................am trying to take big deep breaths!  God grant me strength!

 

33 Replies

  • Hi Josie, wow with what you are going through i think you can be forgiven for an attack of the sads, i have them and my path seems so easy compared to you, keep your chin up and know my thoughts and prayers are with you all the way. Good luck with all your tests and i will be thinking of you on Wednesday when we both have to go through the chemo again.. Take care Sandy X

  • Hi Josie i know exactly how you feel. i have been having weekly chemo and have 3 and a half hours to travel there and 3 and a half back again. then have to organise someone to get my son to and from school.  i finished today yay!

     now i have herceptin 3 weekly and 6 and a half weeks of radiation plus scan tests and heart scans its crazy!!! But i didnt look at the whole picture just each treatment and each week at a time.

     the travelling is hard and draining and stressful the 2nd day i have to have a day in bed to catch up on the fatigue,but im trying my best to keep on top of it and keep looking that this is a means to and end and to enjoy a healthy cancer free life. 

     you will get through this i dont know where our strength comes from but is there. look forward to the good days and try to just go with the bad and let it all out.everyones journey is differant and we have to just do the best we can. sending you lots of strength annie xx

  • Hi Josie i know exactly how you feel. i have been having weekly chemo and have 3 and a half hours to travel there and 3 and a half back again. then have to organise someone to get my son to and from school.  i finished today yay!

     now i have herceptin 3 weekly and 6 and a half weeks of radiation plus scan tests and heart scans its crazy!!! But i didnt look at the whole picture just each treatment and each week at a time.

     the travelling is hard and draining and stressful the 2nd day i have to have a day in bed to catch up on the fatigue,but im trying my best to keep on top of it and keep looking that this is a means to and end and to enjoy a healthy cancer free life. 

     you will get through this i dont know where our strength comes from but is there. look forward to the good days and try to just go with the bad and let it all out.everyones journey is differant and we have to just do the best we can. sending you lots of strength annie xx