The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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happens if I cannot trust my Oncologist?","id":"message:168716","revisionNum":1,"repliesCount":15,"author":{"__ref":"User:user:20536"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:168716"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:168716"},"body@stripHtml({\"truncateLength\":200})":"I went into the cancer centre I normally have my treatments for my 8th Paclitaxel on Tuesday, I told the receptionist that I wished to see my Oncologist before my treatment, she then told me that my O...","body@stringLength":"2310","rawBody":"I went into the cancer centre I normally have my treatments for my 8th Paclitaxel on Tuesday, I told the receptionist that I wished to see my Oncologist before my treatment, she then told me that my Oncologist was taking a 4-week holiday now. I almost broke down and tried very hard to hold my tears in the waiting room. The reason I wanted to see her was because I have developed Neuropathy that my fingers and feet are quite numb and my tongue is a bit numb as well.
To give a bit of background, I was diagonised triple negative bc in July 2017, grade 3 stage 2a with no lymp nodes involved while I was in Brisbane. My surgeon suggested to have single mastectomy but I opted to have a bilateral matectomy, like all the other ladies in the similar situation on this forum, I did not want to deal with the possible recurrance on the other breast later. I did this surgery and 3 cycles of AC in Brisbane then transferred to NSW due to my husband‘s work. I have done 4 cycles of AC and 7/12 Paclitaxel so far (3x AC in Brisbane and the rest in Sydney).
I found the system in Sydney is very different from in Brisbane, or maybe just this cancer centre/or this Oncologist is different (?). I was able to see my Oncologist before each treatment while I was in Brisbane or if she was too busy at the time she would come to have a chat with me while I was having treatments. Nurses were great and her secretary was very helpful. After I was transferred to the current cancer centre in St. Leonards NSW I only saw my Oncologist twice because she is only there two afternoons a week and it is so hard to get an appointment to see her. When I saw her four weeks ago she booked herself in to come and see me in the following treatment but guess what? She did not turn up!
We all know how important it is to be able to trust our medical teams when we are dealing with breast cancer but at the moment I feel so insecure to be \"looked after\" by my Oncologist. I am more than half way to finish my treatments now so I don‘t think it would be a good idea to change Oncologist, but on the other hand I am also worried who is going to make a call to reduce my doseage or stop my treatments to avoid a permanent damage to my body?
","kudosSumWeight":0,"postTime":"2018-01-10T22:34:20.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:168716_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":365},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"I went into the cancer centre I normally have my treatments for my 8th Paclitaxel on Tuesday, I told the receptionist that I wished to see my Oncologist before my treatment, she then told me that my Oncologist was taking a 4-week holiday now. I almost broke down and tried very hard to hold my tears in the waiting room. The reason I wanted to see her was because I have developed Neuropathy that my fingers and feet are quite numb and my tongue is a bit numb as well.
To give a bit of background, I was diagonised triple negative bc in July 2017, grade 3 stage 2a with no lymp nodes involved while I was in Brisbane. My surgeon suggested to have single mastectomy but I opted to have a bilateral matectomy, like all the other ladies in the similar situation on this forum, I did not want to deal with the possible recurrance on the other breast later. I did this surgery and 3 cycles of AC in Brisbane then transferred to NSW due to my husband‘s work. I have done 4 cycles of AC and 7/12 Paclitaxel so far (3x AC in Brisbane and the rest in Sydney).
I found the system in Sydney is very different from in Brisbane, or maybe just this cancer centre/or this Oncologist is different (?). I was able to see my Oncologist before each treatment while I was in Brisbane or if she was too busy at the time she would come to have a chat with me while I was having treatments. Nurses were great and her secretary was very helpful. After I was transferred to the current cancer centre in St. Leonards NSW I only saw my Oncologist twice because she is only there two afternoons a week and it is so hard to get an appointment to see her. When I saw her four weeks ago she booked herself in to come and see me in the following treatment but guess what? She did not turn up!
We all know how important it is to be able to trust our medical teams when we are dealing with breast cancer but at the moment I feel so insecure to be \"looked after\" by my Oncologist. I am more than half way to finish my treatments now so I don‘t think it would be a good idea to change Oncologist, but on the other hand I am also worried who is going to make a call to reduce my doseage or stop my treatments to avoid a permanent damage to my body?
"},"Conversation:conversation:168716":{"__typename":"Conversation","id":"conversation:168716","solved":false,"topic":{"__ref":"ForumTopicMessage:message:168716"},"lastPostingActivityTime":"2018-01-13T16:48:24.000-08:00","lastPostTime":"2018-01-13T16:48:24.000-08:00","unreadReplyCount":15,"isSubscribed":false},"ModerationData:moderation_data:168716":{"__typename":"ModerationData","id":"moderation_data:168716","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:168716_1":{"__typename":"Revision","id":"revision:168716_1","lastEditTime":"2018-01-10T22:34:20.000-08:00"},"ForumReplyMessage:message:168729":{"__typename":"ForumReplyMessage","id":"message:168729","conversation":{"__ref":"Conversation:conversation:168716"},"author":{"__ref":"User:user:20536"},"revisionNum":1,"uid":168729,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"subject":"Re: What happens if I cannot trust my Oncologist?","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:168729"},"parent":{"__ref":"ForumTopicMessage:message:168716"},"body":"Hi @onemargie, yes I have been reading the posts on this forum so I am aware that we have the same type of bc and I am also negative on the gene tests. Knowing someone has survived from TNBC gives me the courage and hope to keep going with my treatments so thank you for sharing your stories, experiences and providing support to all bc sisters on this forum.
@Mollygirl, the way they work here seems to be different from Brisbane, I do not have a channel to talk to my Oncologist except making an appointment to see her (I tried the Breast Nurse, the chemo nurses and called the Cancer Centre) but like I said it was difficult to get her time. She does not come to see her patients who are having their treatments, this is very different from Brisbane too.
I understand perfectly that everyone needs holidays and this includes Oncologists, I guess like @Mrs_H says we do not deal with this on a daily basis so when I have developed Neuropathy and the numbness has increased and even to my tongue I do need to talk to my Oncologist regularly to give me a piece of mind and make sure this does not become a permanent thing.
Well, my Oncologist is away for 4 weeks and this relief Oncologist seems to be more approachable (I have got an appointment to see her next week) and I only have 5 weeks to go if things progress smoothly so I tend to not to make a change now.
How often are the followup checks after chemo is completed? Would it be a good idea that I change Oncologist for followup consultations?
","body@stringLength":"1720","rawBody":"Hi @onemargie, yes I have been reading the posts on this forum so I am aware that we have the same type of bc and I am also negative on the gene tests. Knowing someone has survived from TNBC gives me the courage and hope to keep going with my treatments so thank you for sharing your stories, experiences and providing support to all bc sisters on this forum.
@Mollygirl, the way they work here seems to be different from Brisbane, I do not have a channel to talk to my Oncologist except making an appointment to see her (I tried the Breast Nurse, the chemo nurses and called the Cancer Centre) but like I said it was difficult to get her time. She does not come to see her patients who are having their treatments, this is very different from Brisbane too.
I understand perfectly that everyone needs holidays and this includes Oncologists, I guess like @Mrs_H says we do not deal with this on a daily basis so when I have developed Neuropathy and the numbness has increased and even to my tongue I do need to talk to my Oncologist regularly to give me a piece of mind and make sure this does not become a permanent thing.
Well, my Oncologist is away for 4 weeks and this relief Oncologist seems to be more approachable (I have got an appointment to see her next week) and I only have 5 weeks to go if things progress smoothly so I tend to not to make a change now.
How often are the followup checks after chemo is completed? Would it be a good idea that I change Oncologist for followup consultations?
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you have lymphoedema?","conversation":{"__ref":"Conversation:conversation:262776"},"id":"message:262776","revisionNum":1,"uid":262776,"depth":0,"board":{"__ref":"Forum:board:general-discussion"},"author":{"__ref":"User:user:13942"},"metrics":{"__typename":"MessageMetrics","views":109},"postTime":"2025-03-31T20:42:27.276-07:00","lastPublishTime":"2025-03-31T20:42:27.276-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey 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it has been a while since I have posted myself but as always I love the many messages you share with each other that I have a chance to read. 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