Hi Lois - just reading this thread I am so glad you are ok. It truly is a rollercoaster that we are all on here - thank god for these forums I only discovered a couple of days ago! To be honest it’s taken a year and a bit after diagnosis that I have felt truly ready to face it up front.
To anyone out there my little bits of advice would be:
If you are having a down day, that’s ok. Stay in bed and have a nap, do what you want to do.
My counselor said scream, cry etc for fifteen minutes then if you still feel rubbish talk to someone.
Also, only google to the first page. If you still have questions, make sure you are looking someone in the eyeballs! Google will drive you crackers!!!
I was talking to my sister today and she was talking about future planning and I burst into tears and said I won’t be here in 40 years wahhh (I am 48) so it can hit at any moment but let it out.
Finally you don’t have to be positive all the time, my mum said once in the last year that positivity will help (I am usually very positive) and I said it won’t cure incurable cancer grrrr. But seriously, you feel how you feel and that is ok.
Sending you all lots of love and big hugs xxx