Survivorship questions and resources

Hi!  Education based around sentinel node removal, after effects - my physio tells me that it can take up to two years for everything to settle and the burning, wet feeling under armpit, pressure on where the drain entered the breast, pec muscle et cetera  We are told at the time that it is necessary for removal, and who would argue, however, we are left to our own devices to come to understand the discomfort that is associated with same can be annoying and debilitating, depending on frame of mind and what stage of active treatment you are at.  The physio tells me that the lymphatic system is trying to make new tubes to run around the body as it's normal route has been interrupted by the removal of the sentinel node and the guards.