Loveyoursister is a new player with a high pubic profile at the moment While their initial focus may be research for cure, I'd wonder how receptive they would be to using a tidal wave of public support to lobby for the sort of changes in general survivorship welfare that are long over due.
Bless you all at @BCNA but your wheels turn slowly (though surely) and I wonder if a more 'agile' consumer led online push may pave the way for a research based approach from the mother ship later.
Noise makes news. I think we are in accord that the focus needs to be narrow if it is to travel any distance. 2 years ago I'd have had a go at this. I'm too tired now and would just stuff it up.
