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Thanks in advance.","kudosSumWeight":0,"postTime":"2020-02-28T20:35:19.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:symptoms","text":"symptoms","time":"2025-03-25T05:02:35.876-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:185349_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":223},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"I had DCIS last September, it was removed, but no lymph glands removed. No radiation treatment was said to be needed as it was caught early. I now have a sore spot on my side sort of under where your bra band goes around your body on the opposite breast. Had an ex-ray last week showed up normal but I am going for a U/S on Monday to make sure there is nothing hiding on my rib wall. Today I have started to get these tingle, tremor feeling in my left breast, they happen every few minutes. I would just like to know if anyone else has had these sensations it's just like an eyelid flicker. Thanks in advance.","customFields":[]},"Conversation:conversation:185349":{"__typename":"Conversation","id":"conversation:185349","solved":false,"topic":{"__ref":"ForumTopicMessage:message:185349"},"lastPostingActivityTime":"2020-03-01T16:08:32.000-08:00","lastPostTime":"2020-03-01T16:08:32.000-08:00","unreadReplyCount":6,"isSubscribed":false},"ModerationData:moderation_data:185349":{"__typename":"ModerationData","id":"moderation_data:185349","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:185349_1":{"__typename":"Revision","id":"revision:185349_1","lastEditTime":"2020-02-28T20:35:19.000-08:00"},"ForumReplyMessage:message:185350":{"__typename":"ForumReplyMessage","id":"message:185350","conversation":{"__ref":"Conversation:conversation:185349"},"author":{"__ref":"User:user:22353"},"revisionNum":1,"uid":185350,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"subject":"Re: Query","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:185350"},"parent":{"__ref":"ForumTopicMessage:message:185349"},"body":"I know that tremor feeling. I get it on and off in my left breast - right breast was off in November. My MRI shows nothing but it makes me nervous. I am planning on getting it off as soon as chemo finishes. These breasts make us very nervous, don’t they, as soon as you’ve found that one has betrayed you. Fingers crossed everything comes back good for you xx","body@stringLength":"359","rawBody":"I know that tremor feeling. I get it on and off in my left breast - right breast was off in November. My MRI shows nothing but it makes me nervous. I am planning on getting it off as soon as chemo finishes. These breasts make us very nervous, don’t they, as soon as you’ve found that one has betrayed you. Fingers crossed everything comes back good for you xx","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-02-28T21:21:14.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:185350_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643614981":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643614981","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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Accept to continue or {url} it directly on the provider's site.","buttonTitle":"Accept","urlText":"watch"},"localOverride":false},"ForumReplyMessage:message:198546":{"__typename":"ForumReplyMessage","id":"message:198546","customFields":[],"revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"author":{"__ref":"User:user:22466"},"uid":198546,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:198545"},"subject":"Re: Upcoming surgery","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:198546"},"body":"Hi @Carriemciver2020, I have a very similar story to you and I am just a little bit ahead of you. I was diagnosed just before Christmas 2019 with HR+ lobular BC and I completed neoadjuvant chemo(4 x AC, 12 x taxol).
I had a BMX on the 19th June - 4 weeks ago. I knew from the beginning I was going to push for the BMX as I knew that I could not go through the uncertainty of having scans etc on my remaining breast. My history is that I have dense breasts which were large and as you know, it is difficult to scan dense breasts. I had a mammogram and US every year for the last 12 + years. I was extremely lucky that the ILC was picked up as I had only had my annual scans 10 months prior to the diagnosis.
Fortunately my surgeon supported my decision. I now have the pathology on the tumour which was pretty much what the MRI had shown - no lymph node involvement and they got clear margins. I am yet to meet with my oncologist (next week) to hear the finer details, but I do know that there were unusual cells in my good breast - NOT cancer, but cells that would have needed monitoring. This had not shown up on any scans I have had - I guess they were still too small. One of the nurses said that I would have probably ended up needing some kind of follow up 2 years down the track. This just confirmed that I had made the right decision to have the BMX.
It is a very personal decision and not one I made lightly, I had already been through many years of biopsies and a lot of anxiety. I had in fact been discussing a preventative BMX with my GP - but sadly my diagnosis beat me to it. I should add that I am 53.
When I woke up after the surgery I can honestly say I felt relief. Yes I have been sore, but I have done the right thing for me. I have also had expanders put in as I most likely will not be having radiation and I am able to start the reconstruction immediately. The surgery went well and I feel better every day.
I hope this helps you. I tried to imagine how I would feel each time I had to go to the breast clinic and get an MRI on my remaining breast every year. As I said, this is a very personal decision that only you can truly make. Get as much information as you can and I wish you all the very best. You have already come a long way. M X","body@stringLength":"2330","rawBody":"Hi @Carriemciver2020, I have a very similar story to you and I am just a little bit ahead of you. I was diagnosed just before Christmas 2019 with HR+ lobular BC and I completed neoadjuvant chemo(4 x AC, 12 x taxol).
I had a BMX on the 19th June - 4 weeks ago. I knew from the beginning I was going to push for the BMX as I knew that I could not go through the uncertainty of having scans etc on my remaining breast. My history is that I have dense breasts which were large and as you know, it is difficult to scan dense breasts. I had a mammogram and US every year for the last 12 + years. I was extremely lucky that the ILC was picked up as I had only had my annual scans 10 months prior to the diagnosis.
Fortunately my surgeon supported my decision. I now have the pathology on the tumour which was pretty much what the MRI had shown - no lymph node involvement and they got clear margins. I am yet to meet with my oncologist (next week) to hear the finer details, but I do know that there were unusual cells in my good breast - NOT cancer, but cells that would have needed monitoring. This had not shown up on any scans I have had - I guess they were still too small. One of the nurses said that I would have probably ended up needing some kind of follow up 2 years down the track. This just confirmed that I had made the right decision to have the BMX.
It is a very personal decision and not one I made lightly, I had already been through many years of biopsies and a lot of anxiety. I had in fact been discussing a preventative BMX with my GP - but sadly my diagnosis beat me to it. I should add that I am 53.
When I woke up after the surgery I can honestly say I felt relief. Yes I have been sore, but I have done the right thing for me. I have also had expanders put in as I most likely will not be having radiation and I am able to start the reconstruction immediately. The surgery went well and I feel better every day.
I hope this helps you. I tried to imagine how I would feel each time I had to go to the breast clinic and get an MRI on my remaining breast every year. As I said, this is a very personal decision that only you can truly make. Get as much information as you can and I wish you all the very best. You have already come a long way. M 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DCIS - just diagnosed","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:33905"},"body":"Hi @RJ 77 welcome to the club no one wants to join. There is a lot of information on this website and a lot of support ( and information) on this forum. Right now you will be in shock and disbelief but once your medical team has a plan for your treatment it will be a little easier. Try and stay away from “ Dr Google” and bear in mind everyone will receive investigations and treatment targeted to their individual situation . There are a number of podcasts on here I found very helpful - the one that dealt with the emotional/psychological impacts of a breast cancer diagnosis is by Charlotte Tottman “ What you don’t know until you do” . She is a psychologist who specialised in treating people with cancer related distress who was herself diagnosed with breast cancer . Take care, and post any questions or thoughts on here , we all “ get it” in a way someone who has never received a breast cancer diagnosis can.
","body@stringLength":"983","rawBody":"Hi @RJ 77 welcome to the club no one wants to join. There is a lot of information on this website and a lot of support ( and information) on this forum. Right now you will be in shock and disbelief but once your medical team has a plan for your treatment it will be a little easier. Try and stay away from “ Dr Google” and bear in mind everyone will receive investigations and treatment targeted to their individual situation . There are a number of podcasts on here I found very helpful - the one that dealt with the emotional/psychological impacts of a breast cancer diagnosis is by Charlotte Tottman “ What you don’t know until you do” . She is a psychologist who specialised in treating people with cancer related distress who was herself diagnosed with breast cancer . Take care, and post any questions or thoughts on here , we all “ get it” in a way someone who has never received a breast cancer diagnosis can.
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