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I've read many posts, struggles, hardship, courage, determination, survivors. My thinking is (for me) 1. Accept treatment which will hopefully prolong life, no matter how unpleasant or gruelling or disfiguring and hope all is clear with a survival rate that is not guaranteed, or 2. Withhold all treatment and live life, however long, to the fullest. I am at a crossroad. I have a new relationship of 8 months. Everything was great till we got the news. I'd be interested if anyone has been there & had these thoughts, ,& what/how you came to your decision. I will understand if no one replies, it's a hard question. "},"Conversation:conversation:137005":{"__typename":"Conversation","id":"conversation:137005","solved":false,"topic":{"__ref":"ForumTopicMessage:message:137005"},"lastPostingActivityTime":"2022-08-30T14:27:21.000-07:00","lastPostTime":"2022-08-30T14:27:21.000-07:00","unreadReplyCount":11,"isSubscribed":false},"ModerationData:moderation_data:137005":{"__typename":"ModerationData","id":"moderation_data:137005","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:137005_1":{"__typename":"Revision","id":"revision:137005_1","lastEditTime":"2022-08-26T22:19:10.000-07:00"},"ForumReplyMessage:message:137008":{"__typename":"ForumReplyMessage","id":"message:137008","conversation":{"__ref":"Conversation:conversation:137005"},"author":{"__ref":"User:user:508"},"revisionNum":1,"uid":137008,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"subject":"Re: Patients views","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:137008"},"parent":{"__ref":"ForumTopicMessage:message:137005"},"body":"I’m a carer/daughter and previously was a practicing nurse so don’t know if this helps your decision or not. My mother was diagnosed with BC in May this year, screening delays with covid as with so many. Whilst tumour type grade 3 and early lymph involvement she doesn’t appear to be metastatic with current scans etc. Going through the stats with treatment options she was very pessimistic about survival and considering options and common side effects of each treatment option/phase she decided on giving a couple of treatments a go and then making the most of things, and turning down other treatments. We’re still in the midst of current treatments and then it’s hoping for the best and focusing on quality of life, so I guess a middle road option. My aunt had a different type of cancer and chose a palliative chemo to improve quality of life for the time she had left, and a family friend chose just mastectomy and then make the most of life without other BC treatments. It’s very individual. We all die, it’s a matter of how we chose to live, and my personal belief is quality of life is more important than how long one lives, my Nana lived until 101yrs and enjoyed life as fully as possible until the last weeks when she ended up passing peacefully in her sleep, my grandmother passed in her 50’s and made the most of her time after a terminal BC diagnosis (noting screenings and treatments weren’t as advanced in the 70’s when she was diagnosed).
I’m nearing 40 and have been in ICU on life support then a few years later became a mother. I don’t know how long I have or if I’ll follow the women in my family who’ve had BC (Nana was lumpectomy only at 87, then still drove herself until 94), or what will happen. I know my beliefs and that I’d rather die younger than suffer a prolonged death, and I have friends who want to give everything a chance to live as long as possible for their loved ones. I guess I’m saying, what are your values and beliefs? Given the options you’ve been given what feels like the course that holds truest to your values? If you can find the answers to those two questions it might help you decide. Hth and much light and joy 🌺
","body@stringLength":"2194","rawBody":"I’m a carer/daughter and previously was a practicing nurse so don’t know if this helps your decision or not. My mother was diagnosed with BC in May this year, screening delays with covid as with so many. Whilst tumour type grade 3 and early lymph involvement she doesn’t appear to be metastatic with current scans etc. Going through the stats with treatment options she was very pessimistic about survival and considering options and common side effects of each treatment option/phase she decided on giving a couple of treatments a go and then making the most of things, and turning down other treatments. We’re still in the midst of current treatments and then it’s hoping for the best and focusing on quality of life, so I guess a middle road option. My aunt had a different type of cancer and chose a palliative chemo to improve quality of life for the time she had left, and a family friend chose just mastectomy and then make the most of life without other BC treatments. It’s very individual. We all die, it’s a matter of how we chose to live, and my personal belief is quality of life is more important than how long one lives, my Nana lived until 101yrs and enjoyed life as fully as possible until the last weeks when she ended up passing peacefully in her sleep, my grandmother passed in her 50’s and made the most of her time after a terminal BC diagnosis (noting screenings and treatments weren’t as advanced in the 70’s when she was diagnosed).
I’m nearing 40 and have been in ICU on life support then a few years later became a mother. I don’t know how long I have or if I’ll follow the women in my family who’ve had BC (Nana was lumpectomy only at 87, then still drove herself until 94), or what will happen. I know my beliefs and that I’d rather die younger than suffer a prolonged death, and I have friends who want to give everything a chance to live as long as possible for their loved ones. I guess I’m saying, what are your values and beliefs? Given the options you’ve been given what feels like the course that holds truest to your values? If you can find the answers to those two questions it might help you decide. Hth and much light and joy 🌺
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When I was initially diagnosed with metastatic breast cancer, 15 years after my initial DCIS diagnosis, my husband spoke to one of my brothers and told him how serious my diagnosis was. Then, when my brother did finlly speak to me, he told me about his issues. Since then, I have only heard from this brother once or twice. I am not sure whether he doesn't want to face reality or if he just doesn't realise how serious my breast cancer is. He doesn't live all that far away, is retired and has a motorbike and car so he could come to see me. ","body@stringLength":"644","rawBody":"@\"Kiwi Angel\" I have sort of the opposite issue. When I was initially diagnosed with metastatic breast cancer, 15 years after my initial DCIS diagnosis, my husband spoke to one of my brothers and told him how serious my diagnosis was. Then, when my brother did finlly speak to me, he told me about his issues. Since then, I have only heard from this brother once or twice. I am not sure whether he doesn't want to face reality or if he just doesn't realise how serious my breast cancer is. He doesn't live all that far away, is retired and has a motorbike and car so he could come to see me. 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