Hello I am in Hobart Tasmania. I am 50 years old in the last week I have gad a Mammogram a Ultrasound and Core Needle Biopsy. They have found several cysts which are just that cysts but a few that are different. One of those they took 3 samples out of quite an uncomfortable experience I now have to wait until Tuesday for the results. I am so nervous i do have a fairly strong family history from both mum and dad side...I quess i am here for someone to talk to about what could happen next. Hope its ok to do that. Cheers

Ditto to all the above messages and best wishes from jennyss in Western NSW

Thanks everyone yes its hard to wait for results but it will come around quick enough. My husband and I have had a great talk about it all and we have both decided that no matter what the results are I am going to see a spealist about preventative Mastectomy. I have fairly strong family history and going through this every year is so stressful and as my risk is slightly increased we belive this is best fo me. I am not making thus disision lightly we have done nothing but think about it. Our plans for the future is to travel and live on a boat i do not want the continued worry of this. My breast are so small you wont even notice that they are gone. As my husband jokingly says they are not my biggest assest. Happy Easter and I wish you all the best with your journey. I will let you know how Tuesday goes. Cheers and thanks for listening to me.

I had a really strong family history. On my fathers side 3 of his sisters had breast and/or ovarisn cancer and so had many of their daughters and most likely his mother. On my mothers side my sister (different Dad) had breast cancer and her daughter had breast cancer. I was tested against my father's side known brac1 gene (twice to be sure) and found not to have it. Nor any siblings...so looks like my Father didn't carry it. My sister and her daughter were checked for known genes and none found. Both my sister and I developed cancer around menopause. My niece was much younger.I did have bilateral mastectomies due to recommendation of surgeon, breast density and family history. However since no gene did not go on to have ovaries and tubes removed. It helps to have all the info. To make the decision at a time not in fear. It is a significant change to your body. They can reconstruct the look of your breast but never the feel and the surgery can be extenisive depending on what you choose. I recommend a referral to a genetic counsellour regardless of outcome as it really helped me plan my future and detection alternatives etc.

We are lucky in Hobart there isn’t really a waitlist! I’m public and it has all happened very quickly for me. I was diagnosed 18/09/17 My symptoms were a bruiselike pain in my left breast, 4 days later I felt a lump then a wk later a painful lump in my armpit (I was on holiday overseas at the time so couldn’t get the breast lump checked until 2 wks later). Drs day I arrived home, ultrasound/mammogram/biopsy 2 days later (a Thursday) with Lynne Brothers at Women’s Imaging (highly recommend she’s a straight talker) results following Mon, IVF clinic next day (I’m 31) then started chemo the next month with Louise Nott. Surgery booked for May 18 with Luke Rayner then I’ll have radiation with Marketa Skala in June. There is a “best practice” timeline for everything as well as an “acceptable practice” timeline so even as a public patient they aim for those and rarely cannot make it (although Drs leave and public holidays do impact) I must add I am a radiation therapist at the Royal so do have a little insider knowledge how how it works. Hope that helps and again feel free to ask, we are all here to support each other x

This is a great link that explains it in everyday language. There is an updated page link which shows a few different things but start with the first page.http://breast-cancer.ca/fibro-noma/

Not Diagnosed yet | BCNA Online Network

54 Replies

onemargie
Member
8 years ago
Sorry love brain fart I knew you were in tassie! I meant if you ever live or come up to brissy I can recommend a good surgeon lol. Tried to edit it but left it too late then the internet crapped itself up here! Margie x
Afraser
Member
8 years ago
Good news and best wishes for the future.
Pahill
Member
8 years ago
Yes onemargie it was good news. I am in Hobart and have been referred to a specialist down here. I am so happy for the results today but still have the family history in back of my mind. I have had 4 children now all adults. My husband and I have many plans for our future and we are just 50 so having to worry and go through this all the time is something I would rather not do. My breasts have done a good job feeding my children they are super small now and wont be missed. Hope you are going ok. Thanks for your kindness.
onemargie
Member
8 years ago
Hi there @Pahill isnt that the best news. So happy for you. I think you dodged a bullet for sure and it must be the best feeling for you. If you live in Brisbane I can recommend the surgeon I saw for an opinion he is awesome. He does public private and intermediate surgery At least then you will have the info you need to make the best decision for you regarding your preventative mastectomy. . Biggest hug. Margie x
Pahill
Member
8 years ago
My GP called it fibrocystic breast disease. Which is non cancer so thats great. I am going to see a spealist as with family history my risk is a little bit increased of developing breast cancer. So I will go see him and see what happens. Still considering a preventative Mastectomy. But fir now I can breath again. Thanks for your support and kindness
primek
Member
8 years ago
So a fibroadenoma? Anyway...benign which is fabulous.
Pahill
Member
8 years ago
Hi everyone just received a call from my doctor. Apparently all ok cystic fibrosis was found. I am being sent to a breast specialist to discuss Preventative Mastectomy due to family history. But more relived now. It wi be about a week or so before I see him. Thanks for all your kindness.
Pahill
Member
8 years ago
Thank you quite nervous. I will let you know the outcome
onemargie
Member
8 years ago
Hi there love just wishing you all the very best fro today with your results. Biggest hug. Margie xx
Pahill
Member
8 years ago
Ok Riki_BNCA

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