Hi guys, I'm really trying to navigate my way round here. Anyhow, I'm new (lol) I was diagnosed on Friday 8th with breast cancer (biopsy was not definitive as to type etc) just used the words invasive carcinoma. So Feb 4th I am having a wide excision ? and the sentinel nodes removed and then radiation after that unless the pathology requires I go down the chemo path. I lost my you know what for a few days, but after a rush of appointments, its really weird. Life is as normal. I dont know what I'm supposed to feel because I feel very normal. There's nothing to do, or worry about because we know its cancer. I find this to be a very bizarre stage. I did have an appointment with a social worker/counsellor and found that useful because i was stressing about not stressing. So I just go to work (I actually work for my gp) and do my usual stuff. Occasionally something pops up and a worry for a bit, but then that passes. I dont really know what questions to ask as everything is hinging on the pathology result. Has anyone else felt like this? :)Donna.

Hi Donna, so sorry you need to be on this site but glad that you found it. Really helps to chat with other ladies about what you are going through. Weird feeling so healthy and normal but knowing you have bc. Feelings change each step along your treatment and this is a safe place to share how you feel. Just to let you know, when you post in the SE QLD support group, it won't show up on the main blog page ( this site can be difficult to navigate). Usually that means only others in that group can read your post. Try the "post" tab on the main blog page and you might get more responses. have you ordered a copy of the My Journey kit on the opening page of BCNA? It is packed with info, might help you sort out what questions you need answered. I wish you all the best for the weeks and months to come. Know that we are here for you, Tracey??

Oops, take back my advice on posting in groups, looks like they've fixed that problem ??

Hi Donna, Im really sorry you got to join our club but let me extend you the warmest welcome. Here you will find a safe place to talk about stuff you don't feel OK to say to anyone else. There is always someone with a warm heart and kind word. And it's OK to say "shit".... My diagnosis was in November and I felt quite similar to you. It was all very surreal and I felt quite numb. Even now after two rounds of surgery, my first round of chemo and having to shave my head yesterday, it still - mostly - feels like I'm reading about it. I have had more than my fair share of moments when I've cried and spoked and sulked. But mostly it still feels distant. I had very few questions to ask and the first two months I felt like I was in a riptide. No way out, no control and no sense of time. This may or may not change for you. But whatever way it is, it's ok and normal. If only there was a handbook (Christ knows you get hundreds of them) to tell us the right way to feel but we each have to figure that out on our own terms. My only advice to you is this: be kind to yourself. This doesn't seem like much now but in the coming months this will be most important. Be kind, be gentle, be fair. If you are tired, rest. If you want a second piece of cake, eat it! Now is not the time for self deprivation. I only learnt this past week that the universe will continue to operate if I check out for a couple of hours. This network has been my saviour so never be frightened to ask questions - there are far too many of us here and I guarantee that someone will be able to answer just about anything. Take care and good luck xo

Hi Donna, i was like you in October diagnosed with DCIS and 2 invasive. Was a shock but i had a lot of support from husband, family and the medical team. the lumpectomy went well and all clear so now waiting on treatment to start on 24 feb radiotherapy. I did feel anxious and started thinking of certain things and sometimes thought the worst but then i told myself if it was bad i would be in hospital straight away plus the doctors and nurses were all positive saying it is the very early stages and has a high success rate. Also i had a friend i could talk to outside the family about things as i didnt really want to talk to family incase i stressed them out even more lol. I kept on working and i intend to during my treatment as i feel it will keep me sain and my mind off things. Like Tracey says the My Journey Kit is very good. i ordered it and found it very helpful and answers to a lot of my questions. I use the diary all the time to write things down in. This website is very helpful as well. the support on here is amazing and helps a lot. i wish you best of luck with your operation of 4 feb. take care and keep smiling. :)

Hi Donna, you sound normal to me. It is odd to still think of yourself as a healthy person than this happens and you have to put your body though hell to be healthy again!! I hope you have a good medical team that you trust as you put your life in their hands and you see a damn lot of them. I found my brain shut down (still not working properly!) as a coping mechanism to handle the increased anxiety. A good night sleep always helps even if it has to be drug induced. Wishing you well Kim

Newbie finding her feet | BCNA Online Network

31 Replies

donnafischer
Member
10 years ago
Sorry Brenda, we are a private practice so no bulk billing
Rubychloe
Member
10 years ago
I found this sight veryhard also i am not that savy with the computer or ipad lol. Does anybody no of support groups in the eastern suburbs Melbourne ??
Brenda5
Member
10 years ago
Does he bulk bill? I need a new gp with office staff that will actually DO their jobs.
donnafischer
Member
10 years ago
Brenda, luckily I havent gone down that path. If I've learnt anything from the past 4 years of being involved in pink events, its that this doesnt care who you are or what you've done, its just the luck of the draw.
Brenda5
Member
10 years ago
It is nice to know though that getting breast cancer isn't something that we've done wrong. It doesn't seem to single out anyone and picks any one of us. I felt so guilty in the beginning thinking it must have been because I had my kids late or I breast fed or something I did bad.
donnafischer
Member
10 years ago
:)
donnafischer
Member
10 years ago
Hey Brenda... I'm from the bay!! Looks like we have enough for our own club. That sucks hey LOL
donnafischer
Member
10 years ago
Hi Ann-Marie, to be honest I joined this network over a week ago, and its taken me ages to work out how to find a group, how to post to a group. I used to be part of a forum years ago (before the land of facebook and there was always a front home page that listed all the current topics. That would have been awesome. Because I'm new to cancer, I didnt really know what group would suit me. I find it just generally complicated. I couldnt even find out how to get to a "here's how to navigate this site" Given I was a bit shell shocked with this news, I have to say my brain has been a bit fogged (plus they took my damned naturaly menopause support tablets away and I'm in a big ol fog) So if there was a big obvious "New Members Click start here" button that was huge and obvious, I may have found it easier to get started. Now here's a big bouquet, this particular group is awesome I think :)
donnafischer
Member
10 years ago
LOL glad you find the silver lining. What a shame I havent finally transitioned to menopause. SOOOOO close lol
Brenda5
Member
10 years ago
Frazer coast? I am Frazer coast! Burrum Heads actually and there are at least 7 of us up here who have had or are still going thru treatment in Hervey Bay. You aren't alone.

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Newbie finding her feet

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