Yes, Robyn, it does feel as though we are not being heard. This is a place where our voice used to count. Many of us have stayed quiet in hope that things would improve but that really has not happened. It is this feeling that no one actually asked us what was important to US before the changes were inflicted upon us. Many of us already feel helpless against a disease that has forever altered our lives. Now we also feel helpless on what used to be such a terrific support site.
Please start really hearing us BCNA!
Deanne xxx