Forum Discussion
KimW
9 years agoMember
New to posting on here... Hi There :)
Well this is the part where I tell you about me...
diagnosed at 28yrs of age in 2002 stage 3 triple positive, mastectomy, chemo, rads, tamoxifen/zolodex, oophorectomy, delayed recon R breast Lat Dorsi L breast prophylactic bilateral expanders then exchanged to implants 18mths later due to mets diagnosed.
diagnosed widespread liver mets in 2012, 2yrs chemo Abraxane / Herceptin. Past 3years been on Herceptin / Aromasin.
15yrs survivor living with liver mets since 2012
diagnosed at 28yrs of age in 2002 stage 3 triple positive, mastectomy, chemo, rads, tamoxifen/zolodex, oophorectomy, delayed recon R breast Lat Dorsi L breast prophylactic bilateral expanders then exchanged to implants 18mths later due to mets diagnosed.
diagnosed widespread liver mets in 2012, 2yrs chemo Abraxane / Herceptin. Past 3years been on Herceptin / Aromasin.
15yrs survivor living with liver mets since 2012
23 Replies
- KimWMemberfound this on the Bcna website;
https://www.bcna.org.au/news/2016/04/new-form-of-herceptin-available-on-the-pbs/
fyi - KimWMember@primek same, I presumed it would be similar to my clexane injections on weight but nope sadly. I'd still love to learn more about Herceptin injections. I think the UK do the injections. it would be wonderful though not to go to hospital all the time.
- primekMemberOh my...I would have thought it was dose adjusted. Thanks for the info. Yes I'd be sticking with accurate dosing for sure.
- KimWMember@primek thanks I'm looking forward to the excursion. I have looked into the herceptin injection and I don't like that idea as apparently it is a one dosage fits all, where the iv herceptin is based on your weight so tailored for each individual. I would feel like some people would be getting too much where others not enough and no studies have been done that I know of to say its more effective or less effective than IV dosage. Also the hospitals are giving funding for patients who come and have IV Herceptin so there is a negative impact on the hospitals if it all went off IV dosages. Only know this as I had depth discussion with oncologist about how wonderful it would be not having to go to hospital all the time.
- KimWMemberI must admit over summer I pinch my daughters spray bottle with a built in fan, we got it at movie world best thing invented spritz of water and a fan to boot instant cool down.
- primekMemberEnjoy your trip with your daughter. I imagine the 3 week visits just suck. I guess the injection wouldn't be any better. Hopefully one day there will be an oral version so we can get on with just living.
- socodaMemberAlas I can't take credit for it - I borrowed it from the lovelies here and adapted it to suit my needs, it is very sensational though.
- KimWMember@socoda now see why haven't I thought of that idea before brilliant !!
- socodaMemberHey @KimW, if it helps, I use a spritzer -couldn't find just a plain water atomizer so I got a pump spritzer of Swisse deep sea hydrating mist toner. Smells absolutely beautiful, I can use all of the toning I can get AND I have to wear a uniform that I can't layer so the quick spritz cools me down enough to survive without having to do a striptease (I know I appreciate that aspect of it and I'm absolutely certain its a plus for my coworkers too!!! ;) ) xx ;)
- KimWMember@socoda keep your fingers crossed it doesn't rain, I;m still trying to work out how I can dress in layers to remove for my hot flushes in a hurry, I know it will be cold, waterproofed my sneakers today to keep my feet a bit dryer. the best part my daughters face has lit up knowing that her mum is finally coming on an excursion, been a while last excursion I did was pre mets diagnosis when Chloe was in Kindergarten.
I think I would of been 12yrs old last time I went to Healesville with my mum and dad.
rain rain go away come again another day...couldnt resist.