Forum Discussion

Smellycrackle's avatar
Smellycrackle
Member
7 years ago

Nerlynx for Her2 + early stage breast cancer

That is great news about Nerlynx.  I finished Herceptin in Jan 2018 - a bit over 12 months ago.  I have read that to be eligible for Nerlynx you have had to have had Herceptin in the last 12 months.  I know this is a new drug but has anyone heard whether survivors like myself who are a couple of months out of that 12 month period would still be allowed Nerlynx...  I do so hope so...
her2
neratinib

9 Replies

  • Smellycrackle's avatar
    Smellycrackle
    Member
    7 years ago
    Thanks very much poodlejules -  I just found the link and read a the other ladies comments.  I have probably missed the boat also as I finished herceptin Jan 2018 - maybe that is not a bad thing as from one of the ladies who did the trial - it sounded horrendous. 
  • poodlejules's avatar
    poodlejules
    Member
    7 years ago
    There's also a new discussion  on here at the moment  with the old links. Here's the title below.

    Good news for some .................new drug 

  • Smellycrackle's avatar
    Smellycrackle
    Member
    7 years ago
    Hi Ladies yes it is all very new out.  I am not sure about what other medications you can or cant take.  Thanks Riki I will read the link you sent.  Fingers Crossed...
  • kmcin28's avatar
    kmcin28
    Member
    7 years ago
    Thanks @Riki_BCNA for that information, that all sounds promising. I hope my Oncologist will be on board with discussing this option with me.
  • kmcin28's avatar
    kmcin28
    Member
    7 years ago
    Hi @Smellycrackle I'd not heard of this drug. After reading your post I googled it. Do you know if you still take your AI's as well. I would qualify I think, I finished hercepton in October last year. I have an appointment with my Oncologist at the end of April I will ask him about it. Hopefully you to will be able to access it. The side effects don't sound to flash though.🤔