@Fufan Sorry to hear youve had a "non-experience" with your BC Nurse. I live regionally & my McGrath Nurse was located about an hour away. Despite this, she would ring me, email me & even pop in to see me when she was in my town conducting a get together. I have heard other stories of women who seemed to have "lucked out" when it comes to their experience. I consider myself very lucky to have had the wonderful care & support from the lady I had. i would ring her, email her with all the stupid questions, concerns & even to get clarification on things. She would even advise me on "what to do next" & "what would you do if it were you"?? She made me feel so comfortable & sent me brochures, books & merchandise & I felt very loved. She even offered to counsel my family.
After a few years, once I had recovered fully & wasnt in need of her care, i was very sad when we finally had to part ways as she had been my rock. But by me stepping aside, i know it gave one more cancer patient a chance to be in her care.
As has been said above, there are other avenues of support available. I have been on this forum since day 1 of my diagnosis & the support & knowledge of those who have dealt with it first hand, is amazing.
I have also used the Cancer Council hotline, the BC Nurses at the hospital & also one that worked in my surgeons office. You could even contact the McGrath hotline & speak to someone over the phone to voice your concerns & they may even know of a support group near you that can provide some much needed comfort to you.
i hope you find the care & support you need as we all need it during these difficult times. love & strength. xx <3