@Stone90 ... what a shame the Lodge isn’t on the same hospital grounds. :( That would have made it so much easier ....
Oh dear, yes, the timing could have been better :(. ..... It would be wonderful if one of your friends (or a family member) could stay with you at the lodge just to take a bit of pressure off you and the kids (and look after the kids during your treatment ...) then they could ‘go home’ on Fri pm and hopefully your husband join you for the weekend (or you all go home, but the packing and unpacking is a pain ... and if hubby visits you, it is almost a ‘holiday’!) .... just a thought. Sometimes the lodge may ASK you to go home on the weekends, but we were allowed to stay the while 4 weeks.
When you get your results, definitely ask them if your rads can start that little bit later .... it would be about the same timeline as mine was ... and it would just make everything work SO MUCH EASIER for you and the family. Xx. Good luck ... dig your toes in ..... you may even be the first patient there!! What an honour! Is there a resident Radiation Oncologist as well at the new centre or do you still need to travel to see them. Have you seen the Rad Onc yet?
Have you signed up the the PATS scheme yet in WA? You can claim for some of your fuel and accomodation costs whenever you have to travel to appts or treatment .... even if staying with family or friends. There are forms to be filled in initially by your GP and Specialist/surgeon/Onc ... then, usually you can do it online after that. We have a private group for Rural and regional patients too .... feel free to join that one and read up on the posts. Xx. Once again, the mods can sign you up to the group ... @BCNA
take care and all the best best for your results.
Make sure you grab copies of all your results and reports (I have a big box to put them all in!) .... and also consider recording your meetings on your phone. It is so easy to forget what was said ..
Have you been assigned a breast care nurse yet? They will become your first ‘port of call’ for questions (other than us, of course!) ;)
