It’s Just DCIS, the words of the BCN leaving me feeling like a fraud
It’s like 3 in the morning and as usual the words the BCN has said to me more than once has left me feeling like I’m a fraud and I don’t have the right to say I had breast cancer. Yes I know it could have been a lot worse, while going through this process my surgeon was pushing as long as the cancer had not got of the duct it was just DCIS, then the pathology came back and she told me that it was a 3cm with 3 areas of micro invasion, the results also show they’re double negative and high grade. I needed to go back in for my surgery.
I call my BCN as she told me to so she could go over the results again with me, it’s just DCIS don’t worry about the micro invasion it’s not like there’s a lot it’s just DCIS, so now I’m confused the surgeon is pushing for more tests, so MRI shows another 1.5cm area that was missed in the lumpectomy, sentinel node and other nodes are clear. But my surgeon has decided she still wants to take the sentinel node, after discussion it is decided that I will have a SMX and SNB, everyone supports my decision, well almost. Was told not to see a plastic surgeon just yet as I would more than likely still need radiation.
well good news results came back they got it all, she was finally happy with the margins. We all got together and it’s decided no one wants to see you no further treatment no oncologist (she did tell me at first appt that cancer is over treated), drainage good, it can be removed see you in 6 months. My husband asked me to speak to the BCN as he was concerned that they had changed there minds on radiation, so I called was, the answer if want to waste your money and go see someone you can it’s just DCIS, says the BCN
Since then if I’ve had an issue something wasn’t settling down, pain I would call, I had such bad pain under my scar area was struggling to wear the post surgery bra, so call my BCN it was just DCIS massage the area, you could come in and we can have a look at it if it doesn’t settle, but it’s normal.
well good news results came back they got it all, she was finally happy with the margins. We all got together and it’s decided no one wants to see you no further treatment no oncologist (she did tell me at first appt that cancer is over treated), drainage good, it can be removed see you in 6 months. My husband asked me to speak to the BCN as he was concerned that they had changed there minds on radiation, so I called was, the answer if want to waste your money and go see someone you can it’s just DCIS, says the BCN
Since then if I’ve had an issue something wasn’t settling down, pain I would call, I had such bad pain under my scar area was struggling to wear the post surgery bra, so call my BCN it was just DCIS massage the area, you could come in and we can have a look at it if it doesn’t settle, but it’s normal.
Anyway spoke to my GP was sent for X-ray then CT scan, turns out the pain is being caused from my ligaments the soft connective part of my ribs are calcifying on that side so it causes pain with pressure.
I don’t bother calling with concerns the few times I did was enough, as getting a response at times took days and a couple attempts to reach out.
over 3 months later and I haven’t been and got fitted for a bra and prosthesis because of swelling that flares up on my side where the drain was swells still and gets very tender and having something on there is to much at times I feel like I have a golf ball size swelling in my armpit, but I keep on massaging.
Has anyone else had this experience, I was told I had breast cancer but I don’t say it as I feel like a fraud for saying it as the words of my BCN keeps coming back at me “It’s just DCIS”.
I don’t bother calling with concerns the few times I did was enough, as getting a response at times took days and a couple attempts to reach out.
over 3 months later and I haven’t been and got fitted for a bra and prosthesis because of swelling that flares up on my side where the drain was swells still and gets very tender and having something on there is to much at times I feel like I have a golf ball size swelling in my armpit, but I keep on massaging.
Has anyone else had this experience, I was told I had breast cancer but I don’t say it as I feel like a fraud for saying it as the words of my BCN keeps coming back at me “It’s just DCIS”.