Forum Discussion
Unicornkisses
8 years agoMember
Depending on where you get your diagnosis, public hospital Cancer Unit or GP, there are very many resources that the individual is not aware of.
My diagnosis was a perfect example, found lump, saw GP mammogram, Ultrasound and biopsy at PRP, back to GP for results.
Given a copy of the biopsy results and a referral letter to the surgeon who was on holidays for over two weeks.
No information at all, Nada! Nix!
Nothing about the public system Cancer Centre nearby, nothing about the breast care nurses stationed there, or their psychologist service, nothing about BCNA, or the online support group. Nothing about the My Journey Kit, nothing about the various Central Coast support groups that meet around me, and the CanCare wellness programs, nothing about Encore.
I have had to find all this information out myself, from the ladies on here, from the various support groups I have been recommended to in the chain I had to start.
I have since been to the Public Hospital Cancer Centre and there is information about many of the services there, but if you are not diagnosed at the Breast Screen bus and referred to the Public Hospital Cancer Unit for your ultrasound and biopsy etc, you will not know about any of the services there are available.
It shouldn't work like that.
My diagnosis was a perfect example, found lump, saw GP mammogram, Ultrasound and biopsy at PRP, back to GP for results.
Given a copy of the biopsy results and a referral letter to the surgeon who was on holidays for over two weeks.
No information at all, Nada! Nix!
Nothing about the public system Cancer Centre nearby, nothing about the breast care nurses stationed there, or their psychologist service, nothing about BCNA, or the online support group. Nothing about the My Journey Kit, nothing about the various Central Coast support groups that meet around me, and the CanCare wellness programs, nothing about Encore.
I have had to find all this information out myself, from the ladies on here, from the various support groups I have been recommended to in the chain I had to start.
I have since been to the Public Hospital Cancer Centre and there is information about many of the services there, but if you are not diagnosed at the Breast Screen bus and referred to the Public Hospital Cancer Unit for your ultrasound and biopsy etc, you will not know about any of the services there are available.
It shouldn't work like that.