Hello

Question

I’m Simone diagnosed 2019 HER2 positive & TNC stage 3 Grade 3 BC
I have never joined an online group like this before so I’m not really sure how to navigate around.
I feel it’s taken me this long to be able to retrospectively think about the last 5 years. I feel I have just been in survival mode. So now I’m trying to piece together exactly just what has happened. I had a bilateral skin saving mastectomy & a Diep reconstruction followed by a nipple reconstruction 19 months of chemotherapy & immunotherapy & 7 weeks of radiation. I have never had follow up scans or bloods done, is this normal?
I'm looking forward to communicating with this lovely group & making friends x

iserbrown · Answer

https://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction

Hi @GraceyS

Onya for coming to the forum. There's a wealth of information here and support all round.
The link is to the Private group that you may consider joining and perhaps seek the answers you are looking for presently

Take care

graceys · Answer

Hi @iserbrown Thanks for your reply, I will check it out&nbsp;Take care x

brightspace · Answer

Hi GraceySFollowup protocols post treatment are usually checkup 6 mths/ yearly for Five yearsImportant to touch base with GP/ surgeon&nbsp; for followup scansUsual for breast screen ultrasound&nbsp; &nbsp;checkup mine for remaining breast&nbsp; was organised by breast surgeon as I was Private patientWe are our own advocates in this journey important to seek advice for followup check all the&nbsp; best&nbsp;Bright

graceys · Answer

Hi @brightspace Thanks for your replyI did have monthly, 3 monthly &amp; 6 monthly check ups with the Oncologist, Breast Surgeon, Plastic Surgeon &amp; Radiologist however no scans or bloods taken. I have asked the Oncologist a few times only to be toldthat locally advanced BC doesn’t necessarily require them. Only if you get a pain somewhere that won’t go away then contact us. Which is all a little anxiety inducing. I was just wondering if anyone else had the same experience? The cancer had spread to my lymph nodes &amp; I had a full auxiliary clearance &amp; now suffer with lymphoedema. I wonder if now having no breast tissue do you need the scans?&nbsp;I will take your advice a have a chat with my GP thank you ☺️&nbsp;Take care&nbsp;

Forum Discussion

Hello

Related Content

Recent Discussions

Election called

Travelling overseas with zoladex injections

New will

Questions for your surgeon/medical team when diagnosed - ILC based but also relate to other BC types

Essaic Tea

Disclaimer:

Foundation partner	Major partners