Forum Discussion
arpie
4 years agoMember
Thank you @Meex05 - we are here to help each other - as so many did with me when I joined in early 2018 when I was diagnosed & had my surgery/treatment - and also helping me now, with my husband's illness too. xx
Just knowing that you and your sister & family are not alone - really helps, cos we understand what you are going thru.
I am amazed your sister is not already on some sort of care plan, with ready access to all that she needs. :( Are you living nearby?
And there is also the Otis Foundation, who have access to lovely people with holiday houses, who allow families with BC to stay in their lovely holiday houses around the country, free of charge - you just have to 'get there' and 'take your own food' - but with Covid, my guess would be staying only in WA.
https://www.otisfoundation.org.au/
then click here & click on WA - they have 2 available - one in Mandurah and one north of Perth!
https://www.otisfoundation.org.au/directory
There is often a wait list - but then again, they also have cancelations that may be available too. I hope the family may be able to take advantage of this and that your sister is well enough too.
Maybe if YOU give them a bell first, on her behalf to see if any are available sooner than later ..... rather than getting her hopes up ... as they are usually VERY popular - and available most of the year except school holidays.
You can click on both properties to see how they are set up, to see which one suits the family more.
Good luck xxx. Big hugs all around - to you as well xx
Just knowing that you and your sister & family are not alone - really helps, cos we understand what you are going thru.
I am amazed your sister is not already on some sort of care plan, with ready access to all that she needs. :( Are you living nearby?
And there is also the Otis Foundation, who have access to lovely people with holiday houses, who allow families with BC to stay in their lovely holiday houses around the country, free of charge - you just have to 'get there' and 'take your own food' - but with Covid, my guess would be staying only in WA.
https://www.otisfoundation.org.au/
then click here & click on WA - they have 2 available - one in Mandurah and one north of Perth!
https://www.otisfoundation.org.au/directory
There is often a wait list - but then again, they also have cancelations that may be available too. I hope the family may be able to take advantage of this and that your sister is well enough too.
Maybe if YOU give them a bell first, on her behalf to see if any are available sooner than later ..... rather than getting her hopes up ... as they are usually VERY popular - and available most of the year except school holidays.
You can click on both properties to see how they are set up, to see which one suits the family more.
Good luck xxx. Big hugs all around - to you as well xx