The side effects from my chemo have had a severe effect on my bowels and I need to be close to a toilet. Thus I am unable to work. I understand it is only one week, but I am not coping. I see all these people who are having/had the same chemo as me and continue to work. I find this frustrating. Why can't I be like those other women who continue to work. I feel too tired and worn out now, to go to work.

Just thought I would update everyone about my treatment. It is months since I contacted you all about my frustrations about not working. I completed my four Chemo sessions in late September. I completed my three weeks of radiotherapy nearly 3 weeks ago. I survived!!! There were days when I was sure I would never feel well again in my life. But Hey! I feel good now. My hair has started to grow back too. The secret I found is maintain the bland diet throughout the entire Chemo time. I also kept a diary of my symptoms. I had so many. I was able to anticipate the changes each week. Fortunately my Oncologist did reduce my chemo dose for the last 2 sessions. I was very good. No alcohol; no eating out. Every time I tried to, my gut reacted big time, so I only ate food I had prepared myself. I survived on spaghetti on toast for breakfast. Cheese and vegemite sandwiches for lunch and roast vegetables and meat for dinner each night. I completely eliminated cereals; all greens; tomatoes and all fruit from my diet for the 4 months. Next week I will return to work. I found stressing about whether or not I could or could not work, caused even more stress, so I decided to not work at all for the duration of treatment. I did not get very much exercise and as a consequence I have put on weight. I am now starting to exercise again and lose a little weight. But, I feel good now!!!! I was able to do a bit of hand sewing during that time, when I was not sleeping! I now have a few cross stitch Christmas gifts for some of my relatives. To anyone, newly diagnosed, change your diet, keep a diary and hang in there. You will survive.

Thankyou everyone. Yes, I have already changed my diet and am using gastro-stop. I am also keeping a diary of my symptoms to compare and be a bit more prepared for after the next treatment

Hi @alibrien,Kmakm is right. No body knows how you are going to handle things. You shouldn't compare it will do you no good and it may get better as you go along. I had ACT. Through the AC I carried a lot of those dissolvable immodium tablets in my bag. They work very fast. It got better the next time around though. I also found that the "Hey, I need to pee" was only giving me about 30 seconds warning. Not cool the first few times before I worked it out. That did get better as well.I did go back to work but I only work part time and there were a couple of days I thought I was a bit tougher than I actually was and had to go home half an hour after getting there. All the best lovely.sososos

Which chemo are you having Ali?I had my chemo on a Monday. I possibly could have worked the next day because of the steroids but I could not have worked for the rest of the week because of the fatigue. It knocked me out flat. The first two cycles I could have worked the next two weeks, with difficulty, but I could not have done that in the last two. I had TC.I had the runs terribly for my first chemo and then locked up solid for the rest of it!We're all different luv. Try not to compare yourself to others; it's a dead end. You'll get through, one way or another. If it's getting on top of you, give one of the BCNA nurses a call on the helpline, 1300 500 258. They're wise women who've heard it all and can be a great comfort and source of information. Hang in there, K xox

There's no way I could have worked during most of chemo - there would have been the odd day I could have managed but nothing that me or my workplace could have planned around. It doesn't mean I've been happy about it - I miss work terribly.As for your gut symptoms, ring your oncology centre and ask what you can take to make it more manageable. Don't suffer in silence.

first week after Chemo | BCNA Online Network

15 Replies

Sister
Member
7 years ago
It's an achievement! Not one you wanted, but still... It's good to get back to work but be aware that you are likely to get really tired...and I mean, really tired. So, take it as easy as you can.
kmakm
Member
7 years ago
Yep, bland was good for me on TC. Mind you, by the third cycle I could barely taste a thing...

Well done on getting through @alibrien! And on making the hard but sensible decision on removing stress from your life round the work issue. K xox
alibrien
Member
7 years ago
It is good to hear you are on the mend.
Zoffiel
Member
7 years ago
Good on you @alibrien It's a long haul but there is only one way through it. I've been through the BC wringer twice. The first chemo--AC-- was fine. Not pleasant but manageable. V2 was TC. Nup. Nup, nup, nup. What a nightmare. Like you I lived on the blandest of bland food (just starch and sugar, really) and suffered the additional indignity of blowing up like a life raft after someone had pulled the cord.
Onwards from here! Mxx
alibrien
Member
7 years ago
Just thought I would update everyone about my treatment. It is months since I contacted you all about my frustrations about not working. I completed my four Chemo sessions in late September. I completed my three weeks of radiotherapy nearly 3 weeks ago. I survived!!! There were days when I was sure I would never feel well again in my life. But Hey! I feel good now. My hair has started to grow back too. The secret I found is maintain the bland diet throughout the entire Chemo time. I also kept a diary of my symptoms. I had so many. I was able to anticipate the changes each week. Fortunately my Oncologist did reduce my chemo dose for the last 2 sessions. I was very good. No alcohol; no eating out. Every time I tried to, my gut reacted big time, so I only ate food I had prepared myself. I survived on spaghetti on toast for breakfast. Cheese and vegemite sandwiches for lunch and roast vegetables and meat for dinner each night. I completely eliminated cereals; all greens; tomatoes and all fruit from my diet for the 4 months. Next week I will return to work. I found stressing about whether or not I could or could not work, caused even more stress, so I decided to not work at all for the duration of treatment. I did not get very much exercise and as a consequence I have put on weight. I am now starting to exercise again and lose a little weight. But, I feel good now!!!! I was able to do a bit of hand sewing during that time, when I was not sleeping! I now have a few cross stitch Christmas gifts for some of my relatives. To anyone, newly diagnosed, change your diet, keep a diary and hang in there. You will survive.
kmakm
Member
7 years ago
@kitkatb Same here! Terrible runs during first TC cycle then locked up solid for the rest...
kitkatb
Member
7 years ago
Hi @alibrien, Like you I was on TC and there is no way I could have worked even if I had wanted too. I also had the same with the bowels but only on the first chemo for some reason. Be kind to yourself. hugs xox
Anonymous
Not applicable
7 years ago
Hi @alibrien, I just wanted to see how you were going with chemo?
I hope you're feeling a little better or at least found ways to manage your side effects as best as possible.
I am working on a project at BCNA around work and breast cancer. If there is any support you need in the workplace please let me know and I might be able to offer some support.
alibrien
Member
8 years ago
Thankyou everyone. Yes, I have already changed my diet and am using gastro-stop. I am also keeping a diary of my symptoms to compare and be a bit more prepared for after the next treatment
Sarnicad
Member
8 years ago
We are the same re the bowel thing. Gastro stop and the white diet has been my friend the last three days. I said to my nurses I’ve not had one bad symptom I’ve had all of them to a degree! And mainly together. I’m doubting my ability to work after the next round big time after this one