Hi @Faith123
i had a double mastectomy (no reconstruction) with sentinel node clearance in March 2021. I’m a TNBC so had 4 cycles of AC and then 12 of Paclitaxel and 5 weeks of daily radio (all nodes on right including centrals and up into throat- so a big dose).
Post surgically my pain was beautifully managed. I didn’t have ice packs as they cut the nerves during surgery so sensations are not all that strong (well they weren’t for me). I also had two drains on each side.
The biggest tip I got, which was amazing, is “button up front everything” and “two pieces”. It’s because of the drains and because you can’t raise your arms. I gave up bras the day I had surgery. Haven’t worn one since :):smile:
(I do have one with “fillers” if I “want boobs” so far I haven’t felt the need).
Recovery went pretty smoothly, I have pain relief for home. I did have a recurrent seroma on the non- cancer side. A known outcome for the surgery. But that has now settled after intervention and drains etc.
the biggest “surprise” for me was the sensation of having a big rubber band across the front of my chest, post surgically. 12 + months later the sensation remains just “less tight” and it will settle more I suspect but I also suspect it will be there in some form forever (it’s those nerves that are no longer there). It’s been a blessing in some ways as when other treatment has been needed I don’t have any sensation ha ha. So whilst medicos apologise for wha they are needing to do, needle etc I don’t feel a thing.
Anyway, advice
1. button up everything as much as possible (shirts, jackets etc etc)
2. Two piece pjs
3. Everyone will want to check your former boobs and surgical sites so see above.
4. Waterproof dressings are the bomb diggity but they can’t get fully wet so a handshower is bliss.
5. Getting your hair washed is amazing (by someone at home - as raising arms is an issue- or at the salon to feel even better with a blow dry - it’s the small things).
6. I loved a shower chair as I did feel woozy.
7. Know you’ll have drains. A right bag and a left bag are awesome to carry them to the bathroom etc too.
8. The u pillows for under your arm are great to take the pressure off. Loved mine and used it endlessly. In bed, on the couch, in the car to keep the seat belt off etc.
9. Do your arm exercises that the physio will give you. Fun, no but gives good function.
10. Take the pain relief!
You’ll do awesome.
Rock it!
