Difficult decisions
Hi, I was diagnosed with lobular breast cancer on 24th January. Stage 1 - clear LN. Er and Pr positive, HER2 negative. I've had 2 lumpectomies now and still no clear margins. The second op found anot...
Forum Discussion
Welcome to the blog, my friend!! I'm glad you've found us - you can ask anything of us & we'll do our best to help you thru it, as we've been thru it too xx. Feel free to jump onto this thread to see 'other areas' we muck around with as well - even funny stuff (god knows we all need a laugh now & then!). There are also 'tick sheets' that you can fill in before seeing your team next time - almost 'self assessing' .... I hope these are of use to you xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
Lobular is a particularly nasty little beastie, @JudeDriver - VERY difficult to find with 'normal' scans .... I was very lucky - like @Julez1958 - the mammogram didn't pick up my Invasive Lobular - but my GP actually found it (by accident) 4 months after a clear mammogram! grrr Mine was also directly under the nipple, so my surgeon was happy to 'lift the nipple', rip out the intruder, reassign some fat into the hole & then reattach the nipple .... followed by radiation & then AIs.
IF mine had been 'trickier', I was more than happy to go with a mastectomy - but 5 years later, my surgeon is still happy with the decisions made back then.
As @Julez1958 said - it is a particularly personal decision & you've already had 2 procedures & not had clear margins & the other tumour didn't show up on scans .... all of which is a worry.
Whatever decision you make - YOU have to be happy with it. Right now, that little puppy isn't doing you any favours ..... For your own peace of mind, you are already leaning towards the mastectomy .... and I am glad that your surgeon is accepting of that option as well.
We have 2 private groups you may like to join (click on the Groups list in the blue banner & you can click 'join' on them - Choosing Breast Reconstruction or Flat Chat - No breast Reconstruction - where those choosing NOT to have reconstruction can plead their case.
All the best with your decision making xx take care
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
Lobular is a particularly nasty little beastie, @JudeDriver - VERY difficult to find with 'normal' scans .... I was very lucky - like @Julez1958 - the mammogram didn't pick up my Invasive Lobular - but my GP actually found it (by accident) 4 months after a clear mammogram! grrr Mine was also directly under the nipple, so my surgeon was happy to 'lift the nipple', rip out the intruder, reassign some fat into the hole & then reattach the nipple .... followed by radiation & then AIs.
IF mine had been 'trickier', I was more than happy to go with a mastectomy - but 5 years later, my surgeon is still happy with the decisions made back then.
As @Julez1958 said - it is a particularly personal decision & you've already had 2 procedures & not had clear margins & the other tumour didn't show up on scans .... all of which is a worry.
Whatever decision you make - YOU have to be happy with it. Right now, that little puppy isn't doing you any favours ..... For your own peace of mind, you are already leaning towards the mastectomy .... and I am glad that your surgeon is accepting of that option as well.
We have 2 private groups you may like to join (click on the Groups list in the blue banner & you can click 'join' on them - Choosing Breast Reconstruction or Flat Chat - No breast Reconstruction - where those choosing NOT to have reconstruction can plead their case.
All the best with your decision making xx take care