Difficult decisions
Hi, I was diagnosed with lobular breast cancer on 24th January. Stage 1 - clear LN. Er and Pr positive, HER2 negative. I've had 2 lumpectomies now and still no clear margins. The second op found another 10mm focus of tumour which was not seen on U/S, Mammo or MRI. So my choice now is whether to try a 3rd lumpectomy for clear margins or go for a mastectomy. I've been told if we get clear margins the recurrence rate for lumpectomy and mastectomy are the same. But my niggling fear is the fact that this second focus of tumour wasn't seen on imaging. And lobular cancer has a higher risk of being multifocal so what if theres more in there. So I'm leaning towards a mastectomy. Does anyone else have experience of this scenario? The surgeon has said both options are totally reasonable.
Making the ILC group a PRIVATE GROUP (instead of Public to the world!)
Hi guys At this point in time, the ILC and Young Women's groups are totally PUBLIC ..... anyone in the world can see the posts. I've put a request in for the ILC group to be private ..... so that we may discuss issues and developments in total privacy .... I have posted this in the ILC Group as well ..... General 'info' posts on ILC can be put in the Group AS WELL AS in the main forum, as I realise that not all members with ILC are a part of the group. But this way, if we have more personal/delicate matters to discuss, we can do so in total privacy, I know that the Group Posts are not necessarily sent to all members, so I would appreciate it if you would agitate for this to happen. I will tag @Carissa_BCNA in this post as well, to see the response, as she will help accomodate the request, dependent on the replies. Please make it a YES cheers Arpie We don't even have ILC or Invasive Lobular Cancer as a 'tag' .....
recovering from double mastectomy with Bella's help!
So I had my double mastectomy recently with expanders put in at the same time (photos to follow in 'Choosing breast reconstruction' when I am a bit further along) for reconstruction and when they examined the breast tissue afterwards they found more DCIS, 10cm in total and I was small breasted! and in the other breast which was a prophylactic mastectomy they found lobular cancer so thank goodness I had the double mastectomy. The operation went very well and the Doctors and Nurses were brilliant. This made me laugh :) . My husband took this picture of me and my Poodle Bella sleeping after coming home from the hospital. She stole my lovely Zonta cushion given to me in hospital after my second lumpectomy and much appreciated since <3. I was in hospital for a week in the end after the double mastectomy waiting for one of the drains to ease up. Being diagnosed with breast cancer feels like living in a nightmare so I hope this makes you smile and sending love and strength to all you lovely ladies and men in your breast cancer journey :* <3 xxx
