Forum Discussion
anyone progressed to leptomeningeal disease?
I have a young lady on the TNBC facebook page who has progressed to leptomeningeal disease I wondered if anyone here has progressed to this or has any information I can support her with.
Leptomeningeal disease is quite rare (5% of stage 4s progress to it). Resistant cancer cells enter the cerbrospinal fluid and attach to the meningeal tissue. Sadly it is hard to treat, mainly radiation and chemo but some new approaches drill into the brain to deposit a chemo drug right in the meninges. Don't know if they are using this technique in Australia, I heard about it through a dear friend whose sister has been treated this way in the US. May give up to a year's extra survival. Otherwise prognosis is not good.Poor girl, it seems so cruel after all the treatment she will already have had. My heart goes out to her.