Hi @TripleTea Well, with a GP like that, at least you know where you stand but, sheesh, that must have come as a bit of a smack!
Fear of the future is not ridiculous; it is absolutely normal and, when you think about it, quite sensible. There are many reasons we do not want this disease, right up on top of the list is the fact that it can kill us. The trick, as you are starting to figure out, is putting that fear into perspective. I try not to pretend it doesn't exist and give myself the licence to feel terrified every once in a while. It's a bit like needing a good fart, better of getting it over and done with than waddling around feeling all jammed up then having to do it anyway. My poor shrink is on the stinky end of all that for me--thats her job and it is good to offload on someone who is trained to take it.
Having kids on hand through all this makes life even tougher, we have a tendency to try to soldier on with the result that everyone starts to think we are bullet proof. That's all well and good until one of your wheels falls off and you need help, only to be met with, 'Oh, you are so strong, I/we thought you were coping so well'
Now, about taking help when it is offered. Do it. Yes, particularly in the early stages people will give you the shits, say and do really gormless things and invade your space. Ride with it (says Miss Independent) In the end you will find a group of people you can trust who can help you carry the load. Often they are not the ones you think they will be, which is an issue for another time. This is a long haul, Tracey. Good luck. Marg xxx
