Recurrence
Hi There, I'm posting my story on here as I am feeling lost - my family and friends are really supportive but I just don't feel understood. In 2015 I was diagnosed with low grade DCIS - my treatme...
Forum Discussion
Hi @Mandermartini
I had a recurrence after 10 years--I can't say I was overly surprised, but I was monstrously disappointed and distressed. It's really hard when you have done everything that was recommended--and a bit more. I had a very large tumour in my armpit, that I'd had tested multiple times but which was only recognised for what it was once it started coming through my skin. I've got invasive lobular which is really hard to identify until it's got a fair gallop on. It's a horrible disease.
That was three years ago and after surgery (wide excision that revealed the sneaky shitting thing was in 5 nodes) chemo (again) rads and now AI, I'm sort of getting my head around it. My excellent GP has bluntly stated that we are probably just buying time with the AIs, which is challenging, but it's encourages me to keep swallowing the bloody pills, even when I'm so over the side effects. You've just got to do the best you can.
I've stopped freaking out at every new ache and pain and am trying to get back to 'normal' but it's never far from my mind. The key is to push it back so it's not the only thing you think about. Easier said than done. Keeping looking forward and try not to let this define you. Which really, really is easier said than done--there are quite a few of us here who know that. MXX
I had a recurrence after 10 years--I can't say I was overly surprised, but I was monstrously disappointed and distressed. It's really hard when you have done everything that was recommended--and a bit more. I had a very large tumour in my armpit, that I'd had tested multiple times but which was only recognised for what it was once it started coming through my skin. I've got invasive lobular which is really hard to identify until it's got a fair gallop on. It's a horrible disease.
That was three years ago and after surgery (wide excision that revealed the sneaky shitting thing was in 5 nodes) chemo (again) rads and now AI, I'm sort of getting my head around it. My excellent GP has bluntly stated that we are probably just buying time with the AIs, which is challenging, but it's encourages me to keep swallowing the bloody pills, even when I'm so over the side effects. You've just got to do the best you can.
I've stopped freaking out at every new ache and pain and am trying to get back to 'normal' but it's never far from my mind. The key is to push it back so it's not the only thing you think about. Easier said than done. Keeping looking forward and try not to let this define you. Which really, really is easier said than done--there are quite a few of us here who know that. MXX