High Grade DCIS
Hello all, fortunately after listening to a podcast this morning, I have found this site, thank goodness! Due to having dense breast tissue, I believe my DCIS has been missed previously, only MPO, ...
Forum Discussion
oh my gosh @MrsPP - it definitely sounds like it was missed - and your GP hasn't exactly been compassionate with your diagnosis & anticipated surgery :( .... I can fully appreciate your distress xx
With dense breast tissue there is a bigger chance of BC being missed. Mine was missed (I had my mammogram just 4-5 months before my GP felt my tumours.) A 2nd MG also missed it, even after my GP said where it was - but a biopsy was suggested & that is where it was confirmed.
My own discovery/diagnosis went over the Xmas/New Year period too, and those time frames, whilst not ideal, are acceptable. Mine started in Oct, finally getting a biopsy between Xmas & New Year & diagnosed with ILC on Jan 5, with my surgery 2 weeks later.
In the mean time, whack up any questions that you have and we'll do our best to answer them honestly. I'm glad that you've found us, as we've all 'been there, done that' and know all the emotions that go with diagnosis.
Try & keep yourself as busy as you can over the Xmas/New Year period, doing things you love doing (I fished every day!) - and I'd also suggest you listen to Charlotte Tottman's podcasts (link below) - she is a specialist BC Counsellor who was diagnosed about 5 years ago & had a double mastectomy & chose to remain flat - so knows what you are going thru. Her podcasts are very easy to listen to and are from the heart. She found that her own 'reaction' to the news was different from what she was 'advising' her patients .... (A news article on her is below as well as a PDF for you to read) :
http://www.drcharlottetottman.com.au/my-podcast.html
I concur with @tina_m2 .... call our Helpline on Monday 1800 500 258 (9-5) as the office will be closing Monday afternoon until Jan 6th. (Tho you CAN book a call during this time.)
BCNA’s Helpline will be closed from BCNA’s Helpline will be closed from 5pm Monday 23 December and will reopen on Monday 6 January at 9am (AEDT). During this time, you can request the Helpline team to call you back when we reopen by filling out this Form:
https://www.bcna.org.au/helpline-self-referral-form/
You can read more here:
https://onlinenetwork.bcna.org.au/discussion/27109/friday-update-20th-december-2024-bcna-christmas-closure-details#latest
Have you considered having reconstruction, following the Mastectomy? We have 2 private groups that you may like to join ... one for those having reconstruction and one for those who choose to remain flat.
https://onlinenetwork.bcna.org.au/group/29-flat-chat-no-breast-reconstruction
https://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction
take care & all the best.
With dense breast tissue there is a bigger chance of BC being missed. Mine was missed (I had my mammogram just 4-5 months before my GP felt my tumours.) A 2nd MG also missed it, even after my GP said where it was - but a biopsy was suggested & that is where it was confirmed.
My own discovery/diagnosis went over the Xmas/New Year period too, and those time frames, whilst not ideal, are acceptable. Mine started in Oct, finally getting a biopsy between Xmas & New Year & diagnosed with ILC on Jan 5, with my surgery 2 weeks later.
In the mean time, whack up any questions that you have and we'll do our best to answer them honestly. I'm glad that you've found us, as we've all 'been there, done that' and know all the emotions that go with diagnosis.
Try & keep yourself as busy as you can over the Xmas/New Year period, doing things you love doing (I fished every day!) - and I'd also suggest you listen to Charlotte Tottman's podcasts (link below) - she is a specialist BC Counsellor who was diagnosed about 5 years ago & had a double mastectomy & chose to remain flat - so knows what you are going thru. Her podcasts are very easy to listen to and are from the heart. She found that her own 'reaction' to the news was different from what she was 'advising' her patients .... (A news article on her is below as well as a PDF for you to read) :
http://www.drcharlottetottman.com.au/my-podcast.html
I concur with @tina_m2 .... call our Helpline on Monday 1800 500 258 (9-5) as the office will be closing Monday afternoon until Jan 6th. (Tho you CAN book a call during this time.)
BCNA’s Helpline will be closed from BCNA’s Helpline will be closed from 5pm Monday 23 December and will reopen on Monday 6 January at 9am (AEDT). During this time, you can request the Helpline team to call you back when we reopen by filling out this Form:
https://www.bcna.org.au/helpline-self-referral-form/
You can read more here:
https://onlinenetwork.bcna.org.au/discussion/27109/friday-update-20th-december-2024-bcna-christmas-closure-details#latest
Have you considered having reconstruction, following the Mastectomy? We have 2 private groups that you may like to join ... one for those having reconstruction and one for those who choose to remain flat.
https://onlinenetwork.bcna.org.au/group/29-flat-chat-no-breast-reconstruction
https://onlinenetwork.bcna.org.au/group/1-choosing-breast-reconstruction
take care & all the best.