Forum Discussion

Linlinnylinda's avatar
Linlinnylinda
New member
4 hours ago

DCIS diagnosis last friday

I found out Friday afternoon that I had DCIS, thought nothing of it till later in the evening when I was doing a bit of research . 
Totally  overwhelmed & unsure what to do now, surgeon is having a team meeting Wednesday & then having a telehealth with me.

AtM I’m trying to put together a few questions  based on the pathology results I have.

I want to be proactive &  aggressive in confronting this disease. Any commments or ideas?

I have had MRI, needle biopsy, ultrasounds, & then excision. This was all following my sister diagnosis of invasive lobular breast cancer recently. I had no symptoms prior & a negative mammogram last November .

anxiety
radiotherapy
treatment decisions

1 Reply

  • arpie's avatar
    arpie
    Member
    1 hour ago

    So sorry to see you joining us here, Linlinnylinda​    Whack up ANY questions that you may have, as we’ve all ‘been there, done that’ and all of us combined, should be able to give you a helpful answer. xx. 

    Everyone remembers the shock of hearing the ‘diagnosis:  “You've got breast cancer” ..... Causing sadness, distress and even anger.   It really mucks with your brain, sometimes even more than your body!  It can be highly stressful & upsetting in the early days of diagnosis - so if you feel a bit overwhelmed by it all, give the Helpline a bell on 1800 500 258 (Mon-Fri, 9-5) for a confidential chat with one of the Mods xx.

    Make sure you stay away from “Dr Google’ (difficult tho it is) - as a lot of info there is not only out of date - it probably also isn’t even relative to your own diagnosis.  Going down that rabbit-hole will also muck with your brain.  

    Hmmm - didn't the surgeon explain the results to you??  Have you been allocated a Breast Care nurse yet? They should be able to help you with understanding your Patholgy results - some even sit in on you with your followup appt with your surgeon.  Your team will guide you towards the best treatment for your condition .... be lead by them.

    Make sure you take a trusted friend or relative with you to all your meetings from now on (for physical and mental support - and a 2nd set of ears!) & also consider recording them too, on your phone xx. It is almost impossible to remember everything that is said & this way you can go back over it in the quiet of your home & take notes. xx

    Consider listening to Charlotte Tottman's Podcasts on her own experience with BC - as she explains it all very well xx  She is a specialist breast cancer Counsellor who had a double mastectomy following her own diagnosis, choosing to stay flat. She was surprised at her own reaction to the news/surgery/treatment, as she'd been counseling others for many years & thought she 'knew it all'!  She has done 2 ‘podcast seasons' ... check out the 1st season, right from her own diagnosis onwards and how she coped, then move on to the 2nd season. She is very easy to listen to & you'll probably recognise your own reactions in many of the podcasts. http://www.drcharlottetottman.com.au/my-podcast.html

    Check out this thread too - there is a lot of info on the forum & what to take with you to hospital - even 'tick sheets' that you can fill in to take with you to your appointments on your mental & physical health .... this info has been gleaned from many of our members over the years ... I hope it helps you xx
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest

    take care & all the best with your ongoing appointments xx