Forum Discussion

WavingNotDrowni's avatar
8 years ago

Neratinib

Hi There.  Is there anyone who is taking or has taken this drug.  I am hoping to get on a trial and wondered if anyone else had taken it.  Thanks  Helen

6 Replies

  • Hi There.  I joined the trial in January and yes the side effects are very difficult to live with.  I chose to go on this drug and my oncologist supported that decision.  Nobody actual tells me to my face but I'm pretty sure I am high risk.

  • @Marianne_BCNA
    @Lmc1310 Anne_Marie is not with BCNA anymore  just letting you know. 
  • Hello, sorry I missed this post until now. I'm still investigating, my oncologist not keen as she feels too toxic for end result. I am waiting to hear from another who is on leave. Apologies @WavingNotDrowning and Anne-Marie.